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  #1  
Old 09-06-2010, 11:34 PM
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CasinoKathy CasinoKathy is offline
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Question Weird feelings in bottom of feet

Anyone have these kinds of feelings in their feet--like the nerves are all jumbled up or something? This makes it so hard to walk, because of having bad balance then.

I saw my neuro last week and told him about this problem. He said it is the result of the lesion on my spine.

I know that since starting on Ampyra my weak leg has gotten stronger, but these weirdo feelings continue. Makes it hard to stand sometimes without hanging on to something.

I do have periods that it gets better, but not that often. Stretching the legs seems to help for awhile and sometimes I put ice packs on the floor and put my feet on them. Feels like I got a "foot transplant" it feels so good! I also use one of those hand held massagers on my feet and legs.

Anyone have this problem? And what if anything helps?
  #2  
Old 09-07-2010, 08:30 AM
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CasinoKathy CasinoKathy is offline
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Question LOSING IT!

After I had posted this, I thought jeez, didn't I just complain about this not too long ago?

So I checked back on my threads and yep, there it is. Apparently I have that other disease C-R-S!!

Sorry folks, along with needing a "foot transplant" I also could use a "brain transplant" too!!
  #3  
Old 09-07-2010, 02:41 PM
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We all have blonde moments every now and then!
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  #4  
Old 09-07-2010, 06:23 PM
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DancesWithPugs DancesWithPugs is offline
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Quote:
Originally Posted by CasinoKathy View Post
Anyone have these kinds of feelings in their feet--like the nerves are all jumbled up or something? This makes it so hard to walk, because of having bad balance then.

I saw my neuro last week and told him about this problem. He said it is the result of the lesion on my spine.

I know that since starting on Ampyra my weak leg has gotten stronger, but these weirdo feelings continue. Makes it hard to stand sometimes without hanging on to something.

I do have periods that it gets better, but not that often. Stretching the legs seems to help for awhile and sometimes I put ice packs on the floor and put my feet on them. Feels like I got a "foot transplant" it feels so good! I also use one of those hand held massagers on my feet and legs.

Anyone have this problem? And what if anything helps?
I had the weirdest sensation on the bottom of my feet during this last flare, and I described it as though someone had duct taped a bunch of bouncy balls on the bottom of my foot. Not entirely painful, but really uncomfortable, and yes, it was due to a spinal lesion also.
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dx Transverse Myelitis March/2008 - dx upgraded to RRMS June/2008
Rebif June/2008
Tysabri October/2010
  #5  
Old 09-07-2010, 08:01 PM
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DancesWithPugs, sorry you had that weird sensation also. That was a good description of what it feels like sometimes.

Just tonight I told hubby, that I wonder if there is such a thing as a Foot Massager Box?! Something you can put your feet in and turn it on and it would stimulate the bottoms of your feet.

Wouldn't that be great? He told me to search the internet under foot massager and see what if anything comes up. I do have one of those hand held ones that I do use on my legs and top of my feet, but hard to do the bottoms.

If I find anything promising I'll let you know. --BTW, Hubbies foot rubs feel GREAT, but he can't stay home from work to do that all day long! (why the heck not?) he-he. Are the bottoms of your feet really sensitive too? Mine are, and I leave my socks on for the foot rubs, or I think the man in the moon would hear me hollar!
  #6  
Old 09-07-2010, 08:31 PM
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"Weird" is right! Mine are particularly bad today, worse than the usual tingling/burning, and I can't even find the words to describe it to my family.

I've also had times when it felt like I was walking on wet sand. It felt like my feet were going through the floor, and I had to keep looking down to make sure they were still on solid ground. Very hard to balance!

I take Neurontin, but it doesn't really help.

I hope you feel better soon.
  #7  
Old 09-07-2010, 08:43 PM
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Cathy my dear... you know how I love you so..

Just wanted to make a comment which may seem weird too. No, I cannot relate at all, sorry.

I have had such great specialized healers in my life. One of them being my chiropractor and my beloved nutritionist who both saved my life and kept me working a long time.

But anyway one thing they both taught me is how the nerve endings lose their ability to communicate by either being "cut" like in a surgery or through trauma.

They use a Lazer light and other techniques to encourage the nerve endings to stimulate enough to "communicate" again. You'll probably not hear of this from any MD.

Could it be that the new med is trying to "wake up" the duties of the nerves that have been miscommunicating?
Could it be a good sign? Possibly?

Told you it would seem far fetched.. just saying.

Yes so rubbing..and utilizing those foot messagers could help..possibly?

Just sayin.. cuz I care!

Warmly, Jan
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  #8  
Old 09-07-2010, 10:39 PM
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StillOkay-- the feelings are hard to describe to others aren't they?

Sure does make balancing hard- when you have all those jumbled pins and needles and wacky nerves dancing around !

mjan--I go to my chiro every couple weeks. In the spring I tried the laser light treatment that he had started earlier this year. We both were hoping it would help for neuropathy in the feet, (balance and stuff). The first 2 treatments my feet felt alot better, then nothing. I gave it alittle longer, hoping, but had to quit as it wasn't helping anymore. Oh well, I tried.

You could be right in that the Ampyra could be trying to "wake up" the nerve endings. Although I have had this off and on since Aug. of 2007.

Thanks for replying mjan- as always you offer alot of comforting words!Kathy
  #9  
Old 09-07-2010, 11:27 PM
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zuzu20 zuzu20 is offline
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I am sure i have reposted a few things too. I think i reposted??? lol blame it on the fog. any ways i keep having foot trouble too I keep thinking I am stepping on something sharp I can't see any thing it's driving me crazy along with the Charlie horses in my foot.
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  #10  
Old 09-08-2010, 07:26 AM
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JoanFrances JoanFrances is offline
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Hello Cathy

Understand completely on how you are feeling.

My wried foot feelings started by feeling like I was walking on dry beach sand and that it was between my toes too. Made me constantly brush my feet off and nothing was there. Didn't always hurt but when it did it felt like my feet were bleeding.

The latest sensation is feeling like water has splashed on to the side of my leg at my ankle or that I stepped into something wet on the floor. While this one is never painful, it does drive me crazy at times.


As for finding a foot machine Cathy, there is one that you can soak your feet in that does vibrate to create a foot rub
of sorts. The pharmacy may have that machine.

I saw it in one of those catalogs that we get mailed to us by the ton. When I see it again, if you haven't found one, I will let you know what catalog it was in.

Good luck Dear
  #11  
Old 09-08-2010, 07:47 AM
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Quote:
Originally Posted by CasinoKathy View Post
DancesWithPugs, sorry you had that weird sensation also. That was a good description of what it feels like sometimes.

Just tonight I told hubby, that I wonder if there is such a thing as a Foot Massager Box?! Something you can put your feet in and turn it on and it would stimulate the bottoms of your feet.

Wouldn't that be great? He told me to search the internet under foot massager and see what if anything comes up. I do have one of those hand held ones that I do use on my legs and top of my feet, but hard to do the bottoms.

If I find anything promising I'll let you know. --BTW, Hubbies foot rubs feel GREAT, but he can't stay home from work to do that all day long! (why the heck not?) he-he. Are the bottoms of your feet really sensitive too? Mine are, and I leave my socks on for the foot rubs, or I think the man in the moon would hear me hollar!
Take a look at Sharper Image and HomeMedics. They have several models of foot massagers that may do the trick. Some of them have rotating balls, and they felt really good when I tried them out before this flare, but I'd have to see how they feel now. I might end up on the ceiling!

Thankfully, the "bouncy ball" sensation has resolved itself, but I still have issues with some forms of pressure (like foot rubs). My feet also either feel really hot or really cold, and it drives me batty, but still can't complain all that much. Hopefully, I'll continue to improve as I heal from this latest relapse.

I'll keep a look out for other cool massagers and keep you posted if I see something different. We gotta look out for one another.
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dx Transverse Myelitis March/2008 - dx upgraded to RRMS June/2008
Rebif June/2008
Tysabri October/2010
  #12  
Old 09-08-2010, 08:21 AM
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CasinoKathy CasinoKathy is offline
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JoanFrances and DancesWithPugs-- late last night, or should I say "early this morning" as I stayed up till 2:00, I finally "remembered" that I do have a foot spa that I use occasionally.

Why didn't I think of it sooner!!?? It's right in this room in the closet -jeez- am I brain dead or what?!

I have used it in the past but not for a few months. So this morning I used it for about 15 minutes and boy do my feet feel RE-ENERGIZED!! I just put a small amount of water in so it's not too heavy when I go to empty it.

It has different knob attachments to use that rotate when you put your feet on them. Had to grab my pant leg to lift the foot on it, but I did it ok. I think I'll start using this 2 or 3 times a day from now on. Hey-- I'll have the cleanest feet around if nothing else!!
  #13  
Old 09-08-2010, 08:41 AM
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Seasha Seasha is online now
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Quote:
Originally Posted by DancesWithPugs View Post
I had the weirdest sensation on the bottom of my feet during this last flare, and I described it as though someone had duct taped a bunch of bouncy balls on the bottom of my foot. Not entirely painful, but really uncomfortable, and yes, it was due to a spinal lesion also.
Duct tape - YES! or invisible socks that are on permanently! Cathy and Dances and all - I can relate! It drives me crazy and have been wondering what to do. It's so hard to explain how it feels, but my feet are so sensitive and are either really hot or really cold. I can't be on my feet for very long!

I too have had laser treatments, but it doesn't last long. I'm glad I read these posts. I will also try to find a foot massager/foot spa.

Here's to relief for us all~~
  #14  
Old 09-08-2010, 09:39 AM
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CasinoKathy CasinoKathy is offline
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FOOT SPA

I've had my foot spa since about 2000. I remember visiting my dad in Arizona with my casino friend when all of a sudden my feet hurt so bad I could hardly walk!

My dad got out his foot bath thingy so I could soak my feet. It felt good. He said they make some where you can turn it on and the water swirls and vibrates.

So as soon as I got home, I told hubby about it and he went and got one for me- I think like at a Kohls dept store.
At that time I think it was on sale for about $50.

I know now that I had MS at that time, but didn't know it then. I remember a job I had working in a kitchen when my feet hurt really bad and could hardly stand. I think that was in 2001 or 2002. Would come home from work and use the foot spa then everyday

Sx started in 1994, saw different neuros and had tests off and on for 3 years- no dx. So then I didn't see any docs, just a chiro who helped me when the tingling would start and treated my nerves and muscles. Saw a neuro in 2007rec by my chiro who also set me up for a MRI. The rest is history.

Sorry, kinda got off the beaten path there. Anyways, looking back I have had problems with the feelins in my feet off and on for years. I remember hubby sometimes saying something about my weird balance.!
I told him I have always been "alittle off"!!
  #15  
Old 09-12-2010, 04:48 PM
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Kathy-just a thought-have you had your sugar (diabetes) checked? It could be something related to diabetic neuropathy.
 

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