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  #1  
Old 08-11-2010, 10:29 AM
RobbieCnote RobbieCnote is offline
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Join Date: Jan 2009
Location: Russellville Kentucky
Posts: 4
CLIPPERS syndrome

Has anyone here heard of or know of someone that has been diagnosed withe CLIPPRES syndrome?
After 6 years with the term of demyelinating disease be used as a diagnoses for my condition. My Neuro has finally found through a conference with other Neuros that what I have is called "CLIPPERS syndrome". I am wondering if anyone else here has the same diagnosis? Here is a link to Dr. Sean J. Pittock of the Department of Neurology at the Mayo Clinc in Minnesota. http://www.ncbi.nlm.nih.gov/sites/en...22%5BAuthor%5D Once you get to the site, in the search type "Pittock SJ"[Author]CLIPPERS. I would love to talk to you, if you're out there.
  #2  
Old 09-15-2010, 09:51 PM
nomNeurores nomNeurores is offline
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Join Date: Sep 2010
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CLIPPERS SYNDROME update

Hi RobbieCnote. It seems to be a very rare disorder. Only one case series by Mayo in the whole search engine. I have one patient newly diagnosed with CLIPPERS Syndrome whom I am following and his worsening of symptoms has been halted on oral steroids for the time being. Do you mind touching base with me at ***** and I plan to write and publish another case series on this syndrome with your permission so that we in academia may have better knowledge and understanding of this disease. Thanks Nauman Neuro resident.

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  #3  
Old 09-16-2010, 09:47 AM
RobbieCnote RobbieCnote is offline
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Join Date: Jan 2009
Location: Russellville Kentucky
Posts: 4
CLIPPERS syndrome

nomNeurores, Thanks for your reply and yes I would be happy to correspond with you regarding my case. Actually there are currently 4 cases documented at the Mayo Clinic and 2 I believe out west, maybe at the clinic in Arizona and 2 in Belgium. Here is the web site where I have found information regarding this rare syndrome. http://www.ncbi.nlm.nih.gov/pubmed/20639547 It was first reported by Dr. Pittock SJ, at the Mayo Clinic Rochester MN. But you are right, it seems to be very rare and little is really know about it. I have been seeing an MS specialist at the Vanderbilt MS Clinic for over 5 years. His name is Dr. Subramania Sriram MD.
 

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