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  #1  
Old 07-19-2010, 11:55 AM
katka0603 katka0603 is offline
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Join Date: Feb 2008
Location: az
Posts: 2
Anybody on every 6 or 8 weeks infusion schedule?

Hello,

just wondering if anybody is using Tysabri every 6 or 8 weeks.

I've started on every 4 weeks for the first 6 months and then got switched to every 6 weeks and now i will be going to every 8 weeks.

I am stable on the drug and my Dr. is minimizing the drug exposure this way....

Thanks!
  #2  
Old 07-19-2010, 03:29 PM
ToddwithMS's Avatar
ToddwithMS ToddwithMS is offline
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Join Date: Nov 2002
Location: Hermosa Beach, CA
Posts: 17
Every 8 weeks...

Yup, that's me. No big differences, so I'm fine with it.

Todd
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  #3  
Old 07-22-2010, 06:10 PM
christine bauma christine bauma is offline
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Join Date: Dec 2003
Location: co springs
Posts: 93
every 8 weeks

I am doingit every eight weeks too started that last July no difference, doing better since pre-tysabri much stronger I have been on it for three years.
  #4  
Old 07-29-2010, 04:26 PM
0485c10 0485c10 is offline
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Join Date: Apr 2007
Location: XXXXX
Posts: 1,802
For those who get 6 or 8 week infusions---how often do you get MRI? Do you get them more do you think because of this interval? I would like to talk to my doc about going to 6 or 8 week infusions preferably 8 so my period stays at the week before the infusion---I have had 2 MRI's in the 2 years of Tysabri without new activity, mostly anxiety on my part--neither a routine scheduled one both ordered because I was concerned about something. I'm kind of thinking they aren't really needed I have my pre-tysasbri baseline MRI's and new MRI's would only be needed for when a new significant symptom happens & not a psuedo symptom to monitor Ty effectiveness? On the 6 or 8 week interval have you gotten regular MRI's to monitor Tysabri? Am I backing myself into that?

Thanks, just curious. My last MRI was an unneeded from my anxiety at what I thought was a new symptom or heaven forbid PML?---turned out to be neither just a psuedosymptom. I'm kind of embarrassed about it. The MRI before that was taken for the same reason for a different (psuedo)symptom. I've got to get away from thinking an MRI tells everything. Its embarrassing.
 

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