Hi,
I saw my Neuro last week. I've been on Tysabri for almost 6 years now and haven't had a relapse or any real changes on MRI in that time.
She told me that new research has discovered that the JCV Titer numbers tell more than they thought at first. She said that my numbers are considered high - June was 3.15 and December was 2.79.
She told me that most doctors would automatically pull me off the Ty. She gave me the drug info for the 2 oral drugs, said that she wouldn't want me back on a CRAB drug.
She also told me about a new one that's not approved in the US yet but it has been approved in European countries and she thinks it will be here soon, too. Her office staff gave me the name "Laquinimod" for that drug but that seems wrong.
I did research on that drug but that's an oral drug. She was telling me about a 5 day infusion the first year and the next yr a 3 day infusion and that's it.
Does anyone know what that drug is? I kind of want to stay on the Ty but don't know what to do. Anyone have an issue like this and stay on the Ty??
Thanks!
Jenn
I saw my Neuro last week. I've been on Tysabri for almost 6 years now and haven't had a relapse or any real changes on MRI in that time.
She told me that new research has discovered that the JCV Titer numbers tell more than they thought at first. She said that my numbers are considered high - June was 3.15 and December was 2.79.
She told me that most doctors would automatically pull me off the Ty. She gave me the drug info for the 2 oral drugs, said that she wouldn't want me back on a CRAB drug.
She also told me about a new one that's not approved in the US yet but it has been approved in European countries and she thinks it will be here soon, too. Her office staff gave me the name "Laquinimod" for that drug but that seems wrong.
I did research on that drug but that's an oral drug. She was telling me about a 5 day infusion the first year and the next yr a 3 day infusion and that's it.
Does anyone know what that drug is? I kind of want to stay on the Ty but don't know what to do. Anyone have an issue like this and stay on the Ty??
Thanks!
Jenn
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