Ever since I was diagnosed in May 2013 I've been on Gilenya. And ever since May 2013 I've had a non-stop headache that NEVER lets up. Sometimes it's only at a 2.5 or 3 (on a scale of 0 being non-existent to 10 being totally incapacitated), but it's usually between 4-6. At this level I'm still functional, but just barely, since this level of headache really affects my ability to concentrate.
This summer my neuro suggested I stop Gilenya for up to 12 days in order to test, to see if the headache is caused by Gilenya. So far it's been 8 days, and the headache is still quite healthy, today being about a 4. Four more days to go and I'll have to decide whether to stop it altogether or restart taking it. I REALLY hope that by Day 12 the headache will be a thing of the past, because I really don't want to start Gilenya again if it's the cause of my headache.
If it is the cause of the headache, I'll probably go totally without any DMD for the next few months, and then when I move back to the U.S. (I live in China right now, but plan to move back to the U.S. permanently in Feb.) I'll probably begin Tysabri. We'll just have to see how things work out. But it would be totally wonderful if this headache would stop!
This summer my neuro suggested I stop Gilenya for up to 12 days in order to test, to see if the headache is caused by Gilenya. So far it's been 8 days, and the headache is still quite healthy, today being about a 4. Four more days to go and I'll have to decide whether to stop it altogether or restart taking it. I REALLY hope that by Day 12 the headache will be a thing of the past, because I really don't want to start Gilenya again if it's the cause of my headache.
If it is the cause of the headache, I'll probably go totally without any DMD for the next few months, and then when I move back to the U.S. (I live in China right now, but plan to move back to the U.S. permanently in Feb.) I'll probably begin Tysabri. We'll just have to see how things work out. But it would be totally wonderful if this headache would stop!
Comment