Hi all, great place here. I feel funny posting, but I think I need the support of you nice folks.
I was diagnosed RRMS on June 19th, after 15+ year of those strange sensory symptoms that no doctor wants to acknowledge. I had finally given it up as normal things that people felt, but maybe didn't talk about, so I was surprised when a month long bout of vertigo, with imbalance and a fall, prompted an ENT to do an MRI, and he sent me on to a neuro because of "few scattered"
white spots in my brain.
The neuro sent me for the lab work, evoked potentials, & cervical MRI. Everything came back fine except the visual evoked potential which showed a delay in both my eyes.
The neuro, although I think he is very knowledgeable, is a bit condescending. I think he realizes it, and does seem to make an effort to clarify his intent when he addresses things. I am torn whether to move on or not, as it has been such a long road to finally get a diagnosis.
So, I am considering meds. My course of symptoms has been
long & I am worried whether I have progressed to SPMS. Any guidance on this?
Here is a list of symptoms over the years:
1992 -Vertigo,
Neuralgia right ear
No tx.
1996 - Bell's Palsy,
Trigeminal Neuralgia, both left side
Neg. MRI - tx'd with steroids & Neurontin
2002 - Neuralgia, back of head
Bilat. paresthesias, legs
Burning, bilat. feet
Gloved feeling hands & feet
Weakness, right leg
Neg. MRI
Neg. nerve conduction
Tx'd with steroids & Neurontin
2005 - Severe neuralgia, right shoulder
Episode of left eye pain worse with eye movements
Neuralgia tx's with Neurontin
2012 - Veritgo x's 4 days
Tx. with Meclizine - no improvement, resolved itself
2013 - Vertigo
Imbalance
Sensitive to light patterns
Fall
1996 - Present - Neuralgias, various places
So, that's me in a nutshell, albeit a big nut! Thank you for reading & if you have advice concerning meds, I will be grateful.
Thanks again,
Dana
I was diagnosed RRMS on June 19th, after 15+ year of those strange sensory symptoms that no doctor wants to acknowledge. I had finally given it up as normal things that people felt, but maybe didn't talk about, so I was surprised when a month long bout of vertigo, with imbalance and a fall, prompted an ENT to do an MRI, and he sent me on to a neuro because of "few scattered"
white spots in my brain.
The neuro sent me for the lab work, evoked potentials, & cervical MRI. Everything came back fine except the visual evoked potential which showed a delay in both my eyes.
The neuro, although I think he is very knowledgeable, is a bit condescending. I think he realizes it, and does seem to make an effort to clarify his intent when he addresses things. I am torn whether to move on or not, as it has been such a long road to finally get a diagnosis.
So, I am considering meds. My course of symptoms has been
long & I am worried whether I have progressed to SPMS. Any guidance on this?
Here is a list of symptoms over the years:
1992 -Vertigo,
Neuralgia right ear
No tx.
1996 - Bell's Palsy,
Trigeminal Neuralgia, both left side
Neg. MRI - tx'd with steroids & Neurontin
2002 - Neuralgia, back of head
Bilat. paresthesias, legs
Burning, bilat. feet
Gloved feeling hands & feet
Weakness, right leg
Neg. MRI
Neg. nerve conduction
Tx'd with steroids & Neurontin
2005 - Severe neuralgia, right shoulder
Episode of left eye pain worse with eye movements
Neuralgia tx's with Neurontin
2012 - Veritgo x's 4 days
Tx. with Meclizine - no improvement, resolved itself
2013 - Vertigo
Imbalance
Sensitive to light patterns
Fall
1996 - Present - Neuralgias, various places
So, that's me in a nutshell, albeit a big nut! Thank you for reading & if you have advice concerning meds, I will be grateful.
Thanks again,
Dana
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