Lyme or PPMS or Both
Hello, This is my story,
A friend turned me on to this Dr. John is his name......John was the one that took me to Mexico my first visit his wife was from the area they meet in the states and married and have two children.
I have done so much research in the last ten years that it isn't funny. Think when I was married my husband kind of thought I was obsessed or something, that is not the case I just need to be informed, information is power!
Did I tell you about starting the journey to determine what was wrong with me, I knew in the very early 80's that something was wrong, just what was the problem.
I started keeping every report or file in the early 90's, I have quite a collection!!!
Anyway I was talking to a friend and we were com-pairing notes and we had several similar symptoms we could not lift out leg to get into a car. She said you have Lyme. Her and her husband had been treated and was still under the care of their doctor.
Well what happened was I went to my long term Neurologist and said I want to have a Lyme test done, she went on about there is no reported Lyme test in Missouri and she was very skeptical, but she sent me Dr Gehu off of state line. He did blood work on like 30 different things, from mad cow to syphilis, when the blood draw woman was getting my blood she said wow you must be some kind of special, no one ever gets this much testing at one time.
GUESS WHAT WAS THE ONLY THING THAT CAME BACK POSITIVE!!!!
LYME...............................OH YES LYME.
The Dr. then said this was a false positive and refused to treat me, I begged him to I said what would it hurt it is only anitbiotics. There after every Dr (about 7) I was sent to first thing after looking over my reports would come in and say DO YOU REALIZE YOU HAVE A POSITIVE LYME TEST.
I took all my pile of reports to each and every new Dr.
Long Story Short. I made an appointment with Dr. Brewer in KC, which was the only Infectious Di ease Doctor in the Greater KC area that would accept my insurance, the next closest one was in Springfield, MO.
Anyway Dr Brewer came in after looking over my reports bringing one with him, the very one Dr Gehu said was a false positive for Lyme.
Dr. Brewer then went on to say that I should of been started on the three week inter vinous antibiotic treatment some two years earlier, and if I had I would not of suffered so much permanent damage like I had. He had to do the test again 9due to insurance regulations) by the way it was exactly the same test sent to the same lab.
It was quite an ordeal to have the antibiotic treatment had to be in an operating room they ran a tube inside a vein and into my heart and then every day for three weeks I took a vile out of my frig and gave myself the antibiotics, through the tube that was taped to my arm which went to my heart.
Pretty much, I'm where I'm at, directly due to the medical profession.
First visit to Dr. Brewer he also announced he would not be part of any malpractice suites, now I wish I had perused a lawsuit, maybe I would then have a little money at least to help me live out my life.
I came close to dieing, it is very odd but you know, if you ever been where I was. You realize Lyme is exactly like MS totally.................only one difference and that is you can have a Lyme test and you can not for MS.
Dr. Brewer the Lyme Doctor said he personally thinks a lot of MS patience are actually suffering from mid-diagnosed Lyme Di ease.
My Lyme was Long Term I would guess some 30 years, I remember back then having a large red circle on my leg probably six inches across, it was warm to the touch. At that time I lived in south Mo. where ticks are crazy thick.
But Lyme goes untreated sometimes years. Thank good ness that Lyme is finally coming up in the medical profession and taken seriously.
In Mexico Lyne has been know about for years and is common and easily treated. In Mexico, I'm taken care of, I feel what you should feel when you put your life in the hands of a Doctor.
It is a crime that the states are not doing stem cell treatment like the rest of the WORLD.
The states are to pre-occupied with how to make the most money in the least amount of time, they treat symptoms, if you got better routinely then where would that leave the Doctors and most importantly the MEGA MILLIONS INSURANCE COMPANIES.
All I know that going to Mexico has done nothing but added to my health not taken away. I freaking Love the Dr in Mexico.
So I'm not to crazy about taking any medicine for MS, and side effects - oh my goodness.
So I will shut up finally,
Janet
A friend turned me on to this Dr. John is his name......John was the one that took me to Mexico my first visit his wife was from the area they meet in the states and married and have two children.
I have done so much research in the last ten years that it isn't funny. Think when I was married my husband kind of thought I was obsessed or something, that is not the case I just need to be informed, information is power!
Did I tell you about starting the journey to determine what was wrong with me, I knew in the very early 80's that something was wrong, just what was the problem.
I started keeping every report or file in the early 90's, I have quite a collection!!!
Anyway I was talking to a friend and we were com-pairing notes and we had several similar symptoms we could not lift out leg to get into a car. She said you have Lyme. Her and her husband had been treated and was still under the care of their doctor.
Well what happened was I went to my long term Neurologist and said I want to have a Lyme test done, she went on about there is no reported Lyme test in Missouri and she was very skeptical, but she sent me Dr Gehu off of state line. He did blood work on like 30 different things, from mad cow to syphilis, when the blood draw woman was getting my blood she said wow you must be some kind of special, no one ever gets this much testing at one time.
GUESS WHAT WAS THE ONLY THING THAT CAME BACK POSITIVE!!!!
LYME...............................OH YES LYME.
The Dr. then said this was a false positive and refused to treat me, I begged him to I said what would it hurt it is only anitbiotics. There after every Dr (about 7) I was sent to first thing after looking over my reports would come in and say DO YOU REALIZE YOU HAVE A POSITIVE LYME TEST.
I took all my pile of reports to each and every new Dr.
Long Story Short. I made an appointment with Dr. Brewer in KC, which was the only Infectious Di ease Doctor in the Greater KC area that would accept my insurance, the next closest one was in Springfield, MO.
Anyway Dr Brewer came in after looking over my reports bringing one with him, the very one Dr Gehu said was a false positive for Lyme.
Dr. Brewer then went on to say that I should of been started on the three week inter vinous antibiotic treatment some two years earlier, and if I had I would not of suffered so much permanent damage like I had. He had to do the test again 9due to insurance regulations) by the way it was exactly the same test sent to the same lab.
It was quite an ordeal to have the antibiotic treatment had to be in an operating room they ran a tube inside a vein and into my heart and then every day for three weeks I took a vile out of my frig and gave myself the antibiotics, through the tube that was taped to my arm which went to my heart.
Pretty much, I'm where I'm at, directly due to the medical profession.
First visit to Dr. Brewer he also announced he would not be part of any malpractice suites, now I wish I had perused a lawsuit, maybe I would then have a little money at least to help me live out my life.
I came close to dieing, it is very odd but you know, if you ever been where I was. You realize Lyme is exactly like MS totally.................only one difference and that is you can have a Lyme test and you can not for MS.
Dr. Brewer the Lyme Doctor said he personally thinks a lot of MS patience are actually suffering from mid-diagnosed Lyme Di ease.
My Lyme was Long Term I would guess some 30 years, I remember back then having a large red circle on my leg probably six inches across, it was warm to the touch. At that time I lived in south Mo. where ticks are crazy thick.
But Lyme goes untreated sometimes years. Thank good ness that Lyme is finally coming up in the medical profession and taken seriously.
In Mexico Lyne has been know about for years and is common and easily treated. In Mexico, I'm taken care of, I feel what you should feel when you put your life in the hands of a Doctor.
It is a crime that the states are not doing stem cell treatment like the rest of the WORLD.
The states are to pre-occupied with how to make the most money in the least amount of time, they treat symptoms, if you got better routinely then where would that leave the Doctors and most importantly the MEGA MILLIONS INSURANCE COMPANIES.
All I know that going to Mexico has done nothing but added to my health not taken away. I freaking Love the Dr in Mexico.
So I'm not to crazy about taking any medicine for MS, and side effects - oh my goodness.
So I will shut up finally,
Janet