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    Fed Up Checking in and saying Hi to all...

    I just tried to post, 'my story' and lost it with my clumsy hands..nothing new, though. Too tired to start over, (I can't tell you how good it feels to admit that)!

    I'll try later, just wanted to say Hi to all you kind peeps and thank you all for the sincere and caring advice. Particularly, the person I emailed and received a very helpful response!

    I am 59 (29 years an R.N.,disabled and letting my license go, now, just giving up hope to return to any kind of work) with a little dog, I adore.

    She is 3 1/2 and when I got her, I started walking and making myself, healthier! As I was, Better diet, etc...did all the right things.
    The following link, if it shows up as one..was the beginning of what brought me here, ultimately...


    I have been unable to walk my little dog, all year, except 4 days. If I am able, she does get a walk. She takes care of my emotional well-being. It is most difficult to be depressed, angry or sad with this bouncing bundle of happy energy all around me.

    Having re-located this year from a dry climate to rather humid, I became very symptomatic in March. This year has been a struggle.

    However, M.S, after 48 years of medical care for various problems, only made sense...
    M.S. put all the pieces of the puzzle, together for me. It sort of makes me happy to know, what is wrong with me, even if my hmo does not want to acknowledge this or treat it.

    Thanks to advice here, I am going to ask for some meds to control a few problems! And I have made a bunch of appointments with specialists, for each area of concern, I have. Seems like the only thing that doesn't have a problem is, my appendix! LOL

    part of my story:
    http://www.msworld.org/forum/showthread.php?t=124473

    I am just learning PC Boards use, just learning how to post links, now. Completely computer illeterate and frequently forget my passwords and get locked off boards. Sorry, I know how to spell and speak, but it doesn't always come out that way, and I am tired of being spell check dependent. Perhaps, people here will understand.

    An activist for Medicinal Marijuana, is where my passion is and has been for a few years. I've taken a back seat, in the activism and not allowing my picture or name to be associated with Medicinal Marijuana, until I became passionate for a few patients, this past May.

    It was my goal and I was working with an M.D. setting up educational seminars for medical workers. To understand the medicine and its' use's. I was not using it very often, except for pain. And I felt, most MMJ patients, needed a voice, from a medical professional without 'slurred' medicated speech. I lost my voice & balance in July. It seems to be back, now, but weak.

    It is my hope, to be able to contribute here, as I have siphoned off plenty, which makes me, much more comfortable, dealing with my current situation.

    If you have any questions, ask, I'll answer! UP


    **URL removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to UserCP > Edit Details**

    #2
    Nice chatting last nite

    One suggestion - type longer post in Word Perfect or Type Pad or whatever word processing program you have. Then copy & paste it to where you want it to be.

    Learned this after losing what I had typed & getting upset over it.

    KK (kellygrn)

    Comment


      #3
      Hi Fed...Merry Christmas (or Happy Holidays)

      I'm 58 and was dxed about 14 years ago. Started out with RRMS and severe case of denial. Its been a slow ride (now PRMS) but I do all I can to keep myself up. It's been a mixed bag of happy and sad times. I try not to give in to the depression. Im aware of it though, especially when I want to do something spontaneous and cant. Its a pain but so much planning has to go into the most simple things.

      Last nite I was at a party when somebody wanted to go see a singer we know perform. Everybody (except me of course) piled into the car and left. Even if they had asked me asked me to goI have never been to this location;dont know the layout so I probably would have said no anyway.

      Sometimes I feel sad because its a burden to have me along. Before MS I would be to one say lets go (just spontaneous ya know). Now it takes a major friggin game plan to have me along.

      Sorry to lay this on you. It just came out.

      So now back to you my dear. Its probably a relief know what you're dealing with. If you r here then you probabvly have been learning lots about how to take care of yourself and the dog.

      Besides good wish I want to say do your best to walk or exercise everyday
      [I]Tellnhelen
      Progressive Relapsing MS

      Comment


        #4
        Thanks Kelly,
        I use a laptop and it sometimes screws up, between windows. Plus, I am not very good at notepad, yet. Still trying to learn. Some days are much better than others.

        Oh tellnhelen,
        I have 99.9% changed all my family and friends. My entire life, is much different, than I planned; And I AM loving it. I do things with very caring mmj patients. Our party was last Saturday, I had a ball!

        I couldn't dance, but the other patients were showing me how to do new things! There was a time, I felt, so left out.. I forged myself a new life and doing as I please! Finally, old enough to not be concerned of 'being left out.' But,

        that is not cool to, not even ask you along.. I feel badly for you, that must be depressing, all in itself. I think I would have cried.

        A long time ago, I learned to; adjust my expectations and I am seldom disappointed! Particularly, with myself. Others...another story and why I have all new friends!!!

        We had an author speaking a few weeks ago, the crowded room got a little warmer, for me, and I had to go outside; I was followed by another, concerned patient.

        I use to make 'excuse's' for not going places, my fatigue and pain, have been a big issue. That was before I discovered the mmj and now, I have a life and am happy with what I CAN do.

        It is a pleasant group and of all ages, so plenty of 'help' around, to pick up all the stuff, my clumsy hands drop! I've missed a few events, but I'll have plenty of time for more! And looking forward to the Spring! Fed

        Comment


          #5
          I wish you ALL a Merry Christmas and / or happy holidays, which ever fits the bill. I am so happy for your presence here.
          FedUp, I am glad to know that you were trained and worked in the medical arts. I hope your expertise on this site will lend some fact to some of the posters' questions.
          Going to open presents with the family , now.
          Merry Christmas , all.

          Comment


            #6
            Thank You Jerry, MERRY CHRISTMAS, TO YOU AND ANYONE ELSE READING THIS!

            hehe, it is rather nice to be able to use capital letters and know I won't get chewed out for shouting! lol besides, I had a tonsillectomy at 19, I have not been able to shout and my voice, has been, small since.. avoiding, trying to raise it.

            it is my hope to be able to share what I know, for sure...I've specialized in many areas. Exercising my mind, on some days, is about all I am able to do. I've found a safe haven on another forum, over my years of disability. Fed

            Comment

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