According to my Neuro, Tysabri is my "Hail Mary" pass. Copaxone and Rebif were not effective.
I'm coming up to my 7th infusion and I've seen no improvement. Spasms seem worse and if I'm walking for more than around the block, I need the walker. Fatigue and Parasthesia (sp?) seems worse, to the point where I need to visually inspect for cuts, burns and bruises.
I've gotten 2nd and 3rd degree burns on my hands that have healed beautifully, no infections and that worries me because I don't think the Tysabri is working. I see my Doc again in Oct. and I'm going to request an MRI. He seems reluctant to order any testing right now, unusual.
I had big hopes and now I'm just disappointed.
Peace.
Anna
I'm coming up to my 7th infusion and I've seen no improvement. Spasms seem worse and if I'm walking for more than around the block, I need the walker. Fatigue and Parasthesia (sp?) seems worse, to the point where I need to visually inspect for cuts, burns and bruises.
I've gotten 2nd and 3rd degree burns on my hands that have healed beautifully, no infections and that worries me because I don't think the Tysabri is working. I see my Doc again in Oct. and I'm going to request an MRI. He seems reluctant to order any testing right now, unusual.
I had big hopes and now I'm just disappointed.
Peace.
Anna
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