Hello

[Canuck334]

Hi,

My name is Norm, I am 41 years old and I live in New Brunswick, Canada. My adventure began back in April while I was out splitting firewood in my garage. I had a sudden onset of double vision which lasted only 10 minutes. I atrributed it to being over tired, decided to get some sleep. Woke up next morning with one side of my face not feeling right and a nasty headache with dizziness. Decided to get checked out at the ER and they initially told me they thought I had a mini stroke.

After some tests they dismissed the mini stroke and had me see a neuro. I had an MRI done and he found a lesion on the corpus callosum splenium. I just had a LP last week and I am waiting for results at this point.

The last 3 months my symptoms have varied from severe head pressure, sore eyes, tingling of feet and legs, foot pain, and the occasional zaps in my feet.

Since the talk of MS began, I've been lurking the site, using it as a resource to learn more about MS and to see what others have experienced during this "Limbo" stage.

[MizMeesha]

Hi Norm, canuck living in Ottawa here - glad you found this site and that you've posted.

Things are moving pretty quickly for you. Your tale sounds much like mine; I had a week of blurred vision and a bizarre flurry of tingles which I thought was a migraine, but awoke the next morning to a numb face and arm – they thought I stroked. Lesions on CT led to an MRI and once stroke was cleared off the table – off to the MS specialist, LP and more testing. I was diagnosed January 28th of this year.

Limbo is stressful because of its nature – not knowing. That said, knowing isn't all that relaxing either until the reality settles in.

It sounds like your in good hands and your team is moving quickly to figure out what’s going on. I do hope you have something easily remedied.

Keep calm and (ya right) don’t stress. Keep us posted on how things are progressing and what the end result is.

[CaroleL]

Hello and Welcome Norm!

About 5 years ago I had a partial paralysis on my left side for about 3-4 months. At the time, it was thought to be caused by a stroke. It wasn't. 5 years later, wheelchair bound for over 2 years now, I'm still in Limbo.

It's difficult to be in limbo because we're not getting treatment that is specifically for MS/relapses. Having a good, caring doctor is a must. It sounds like you're doing ok in that sense.

Don't be shy to post any questions or comments you may have. We're here for you!

Best wishes!

[hunterd]

WELCOME NORM! We are glad to have you here! There are many wonderful people here, so any time you have a question, just ask. AGAIN WELCOME! Good luck

[aspen]

An Ontario canuck :-)

... who is also in limbo. Things started for me in January ... or possibly last April ... or perhaps in the fall of 2000 .

Welcome to the site. And, you live in a BEAUTIFUL province!

[Canuck334]

Update

So I finally had my appointment with the neuro to go over all my blood and lumbar results. Lumbar was positive for the Obands, and with the lesion on my Corpus Callosum of my brain, he says all the "technology" tests lean towards MS.

But, with my lack of prolonged physical symptoms I still do not meet the criteria for a MS diagnosis. I completely understand the diagnosis process, and the fact they need to rule everything else out.

I understand the drug treatments can be hard on the body, and this being the reasoning for the diagnosis criteria.

It just does not make all the waiting any easier, and now it seems its more waiting until I have a more severe physical symptom. Not looking forward to the MonSter deciding to make an appearance.

It could take days, weeks, months, even years.

Think ill go ride my bike

[PositiveMS]

Hello!

Hi Norm! I'm a maritimer too, just over in Nova Scotia. This site is very helpful. I'm 33 and I definitely have MS. I was diagnosed in 1999. I hope you don't stay in limbo for too long!