I'm not sure how long is typical to wait for your MRI results; I think in the past I've usually had an appt with the MS specialist 1-2 weeks after an MRI so I'd find out my results then.
Here's the scoop this time.
9/21: Had appt with NP at MS center due to new symptoms popping up. She ordered an MRI of brain and C-spine to be done within the week and told me to call 3-4 days after the MRI to find out at least initial results (i.e. the radiologist's report) and then bring the CD to my followup appt on 10/25 to get more detailed results.
9/24: had MRI done at a local hospital (I'm 75 miles from my MS center)
9/29: Call MS center to make sure they got the results and find out what initial results. Nurse tells me they have the CD and everything and will call me after the NP and MS specialist have a chance to look over them, "within 1-2 weeks."
10/12: Call to report new symptoms that have popped up since my appt and see if MRI results are ready. Nurse tells me the radiologist's report of the C-spine says "unremarkable, no lesions"--yay! But she says they never got my brain MRI and did not receive the CD. Says she'll call the hospital that did my MRI to see where brain MRI is.
Sigh.
I'm getting really tired of waiting, especially since the NP seemed pretty concerned and thinks I might need to switch to a more aggressive drug depending on these results. (They also drew blood to see if I've develops neutralizing antibodies against Betaseron and tested for the JC virus and said those results would take 4-6 weeks.)
I have the CD and I actually tried popping it in to look at it but my computer crashes every time I try to open it. Same on DH's laptop. When I called on 9/29 I asked the nurse if there was a way to tell if the CD was OK before getting all the way up there for my appt and she said, "Well, the hospital sent us a CD too so don't worry about it." Yet now apparently they don't have the CD.
Is this similar to what you guys experience after an MRI? What would you do for followup at this point? I feel like I'm getting no clear answers from the MS center, and I get a different answer every time I call about what results they have received. :P
Here's the scoop this time.
9/21: Had appt with NP at MS center due to new symptoms popping up. She ordered an MRI of brain and C-spine to be done within the week and told me to call 3-4 days after the MRI to find out at least initial results (i.e. the radiologist's report) and then bring the CD to my followup appt on 10/25 to get more detailed results.
9/24: had MRI done at a local hospital (I'm 75 miles from my MS center)
9/29: Call MS center to make sure they got the results and find out what initial results. Nurse tells me they have the CD and everything and will call me after the NP and MS specialist have a chance to look over them, "within 1-2 weeks."
10/12: Call to report new symptoms that have popped up since my appt and see if MRI results are ready. Nurse tells me the radiologist's report of the C-spine says "unremarkable, no lesions"--yay! But she says they never got my brain MRI and did not receive the CD. Says she'll call the hospital that did my MRI to see where brain MRI is.
Sigh.
I'm getting really tired of waiting, especially since the NP seemed pretty concerned and thinks I might need to switch to a more aggressive drug depending on these results. (They also drew blood to see if I've develops neutralizing antibodies against Betaseron and tested for the JC virus and said those results would take 4-6 weeks.)
I have the CD and I actually tried popping it in to look at it but my computer crashes every time I try to open it. Same on DH's laptop. When I called on 9/29 I asked the nurse if there was a way to tell if the CD was OK before getting all the way up there for my appt and she said, "Well, the hospital sent us a CD too so don't worry about it." Yet now apparently they don't have the CD.
Is this similar to what you guys experience after an MRI? What would you do for followup at this point? I feel like I'm getting no clear answers from the MS center, and I get a different answer every time I call about what results they have received. :P
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