I had it all even I didn't know.

[rinarina]

Uhm Hi everyone. My name is Rina and live in Norway! Nice to meet everyone.

I do not what is the perfect start. Well.. I came back home today after 1 week stay on neurological department to find out it I have MS... well.. my problem was the walking problem and fatigue at the start. So I didnt even know what MS was... My blood test are all purfect. No vitamin needs, no infection, kidney, diabetes, metabolic problems or even depression! My doctor almost start to scratch his head... So he thought IT could be CFS also common used in my country as ME.

After hard fight with fatigue and weakness (special for hot water the shower start to be nightmare)..I start to be better! Like.. I could walk in my pumps and shop shop shop. Then In september this year.. Kabomb! the h*ll was back... the joint stiffness, weakness, walking problem, low memory and difficult do the homework. I got problem with chewing, swallowing and... not long ago the vision start to messing up. This last week the specialist of neurology look really after the MS... something I didnt knew alot about, but sametime I got a confirmation, it fits with my problems. I thought I was insane.. my vision on the left eye is so blurry.. It started some weeks ago.. but I thought I went nuts so I just dont told nobody.

It is like... if I want to walk over the road I need to really be sure.. cuz my vision can not judge how far or close the car is on the first second.

Anyway.. Mri didnt show nothing, lumbar puncture the doctor said "the test is not ready yet but until know it's look normal " but my vision test/ (I really dont know what they used sort of something attached on the head) and show something on the optic nerve. Some of you thinks I am really nuts.. It's okay, I start to think also.

The doctor tested the reflexes.. normal..
my problems and the vision is my best proof of MS.. but MRI.. and clinical test are ok.. What h is wrong? He have to be done with the epicrisis report.. Have to wait 1 week.

I should be happy, but I am not.. It's easier to know what is wrong and start the treatment.. I have so many dreams..

I dont wanna read about MS on internett.. is so hopeless.. but I just wanna you all to share minds.. I read that the MS cannot be proven by any test 100%... and is
very rare, but STILL possible that the MRI is normal... help.

**( ) contents removed per MS World rules of profanity. **

[Jules A]

Hi Rina,
I don't have advice but wanted to welcome you to the message board.

[rinarina]

Hi Rina,
I don't have advice but wanted to welcome you to the message board.

Thanx Jules A <3. I Should *fix* the line.
xo from scandinavia

[Wordsgood]

Hi Rinarina. Nope, you're not nuts!

It is scary (okay, terrifying!) to get this news and I wish you all the best.

I've only recently gotten my diagnosis and joined here, but I've already found this site to be a huge source of info and support.

From what I've learned so far, you are correct that there isn't generally a definitive set of tests to determine if you have MS or not, but chronic fatigue, visual, memory and other cognitive issues are big indicators. What you described sounds like an MS "episode" as my one neuro I saw described it.

I don't have any read advice either, but wanted to let you know people are listening and do care!

[rinarina]

thanks

Hi Rinarina. Nope, you're not nuts!

It is scary (okay, terrifying!) to get this news and I wish you all the best.

I've only recently gotten my diagnosis and joined here, but I've already found this site to be a huge source of info and support.

From what I've learned so far, you are correct that there isn't generally a definitive set of tests to determine if you have MS or not, but chronic fatigue, visual, memory and other cognitive issues are big indicators. What you described sounds like an MS "episode" as my one neuro I saw described it.

I don't have any read advice either, but wanted to let you know people are listening and do care!

Thanks for really nice world! Really help to hear.
Almost all is exclude. Even ME/CFS.. He didnt exclude the MS even the MRI was negative.. Just the Symptoms and VEP was *the best proof* So I hope he will find a solution.. Is almost horror to read that people waits xxx years to get the right diagnosis :S

[hunterd]

WELCOME RINA!!!! It is great to have you here, but I am sorry why. We don't think you are crazy, as many of us have gone through the same thing.
You can always check out the national MS Society's website for good information, you can find them at www.nationalmssociety.org or you can check out www.msif.org (the MS international Federation). Good luck

[zenlightenment]

Hi Rinarina,

What type of MRI did you have? Did they use contrast? (Was something injected into your vein during the test?) I've found a lot of information about MRIs and how they can "miss" lesions, especially when they are newly formed, unless contrast is used. Since your doctor seemed confused, I'm wondering if you had an accurate test. I would look more into what test the doctor performed. It sure sounds like MS, but some other things mimick MS, so I think you should push for some further testing.

Hope all goes well with you. <3

[Norkvinne]

also in Norway

Hei Rinarina,

I also live in Norway and haveMS. I thought mine had started only last year but looking back on my history they figure the trouble I had as a teenager was probably the start of it. Pretty long unaffected time if that is true So maybe have had it for many years and did not know it.

My MRI (without contrast) is full of scars...in some sort of pattern that is apparently typical for MS. I guess I should feel lucky that with that many scars in my head, I am so healthy.

The fatigue is the hardest part for me right now. It is so unpredictable from day to day, and even on a 'good' day, my energy can suddenly just drop...like the batteries suddenly were dead! Hard to get home again if I had decided to go for a walk in the forest

I have been told that if you are going to have MS, Norway is the country that takes it most seriously so we are lucky.

What part of the country do you live in??? I am in Sør Norge.

[Cbinurse]

I can relate

Well my dear, you are not alone! I have been having Mri s for years..all neg, but al,the symptoms pointing to ms. I was even catheterizing myself at one point because my bladder wasn't emptying. They never did a full mri of my spine..and I'm not having another one..ever! I'm a nurse who likely knows way too much about this disease. I'm trying to change my diet and take my vitamins by the handful ..in a relapse right now, and boy is it rough ..I need this site because I need to hear from others experiencing the same..I just woke up, my hubby is at the gym ,we have been invited to dinner tonight..at seven ..my bedtime no less..but I'm determined to go..right now I can't get into my kitchen without hanging onto furniture ..I just want to curl up in a ball and cry..but not let my family see because it upsets them so much..I have two Great Pyrenees..my beautiful boys are my comfort..I just need a place to talk..or cry..xo