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M.S and fibro

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    #16
    Is there a connection?

    I have wondered if they are connected, I was diagnosed with fibro in 2000 and diagnosed with ms 2011. Does anyone else think that this is odd? Also the connection with seizures,eye problems, I noticed this with many people there has to be something to it. Does anyone feel this way also?

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      #17
      Originally posted by tortis View Post
      Hi everyone, I still feel that with so many people with both diseases that they must either have the same triggers or that they are directly related. I have never believed in coincidences unless they were infrequent but there just seems to be to many people with both M.S. and Fibro.
      PEACE
      Tortis
      I so agree with you and I think the 5% of MS people that do not have lesions or positive spinal are the ones who get the fibro tag!! I have three lesions and have suffered for years with fibro tag!! Recently told by a neuro can not be MS because I only have three lesions. Another neuro said that I have jerky reflexes but he thinks it is because I suffer from depression that I have tremors and tingles and urination urgency. I give up all hope of ever getting help or ever having my life back this is the only life I have known full of pain and muscle cramps in my legs so bad I am afraid to sleep.

      I was told eat bananas drink water...... I will never understand how doctor could label me as depressed becaue my daughter and grand daughter passed away. Depression does not cause lesions and all the other things I am suffering from. To be honest I do not want the MS tag I just want to stop hurting, stop the tremors and tingles and to go outside in the sunshine again not live like a vampire anymore!

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        #18
        I have been diagnoses with MS for 15 years. I have the type that includes a lot of pain. This week I was told that the Dr thought the pain I experienced was from Fibro more than MS... but I'm thinking the MS cased the Fibro due to the nerve and muscle pain?

        Do you all have pain with your MS symptoms?

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          #19
          Possible Seizure Answers

          Originally posted by Tammy-Rose View Post
          I have wondered if they are connected, I was diagnosed with fibro in 2000 and diagnosed with ms 2011. Does anyone else think that this is odd? Also the connection with seizures,eye problems, I noticed this with many people there has to be something to it. Does anyone feel this way also?
          Google or Bing this title "Autonomic Dysfunction Presenting as Postural Orthostatic Tachycardia Syndrome in Patients with Multiple Sclerosis."

          I suffer with syncope (fainting). While trying to understand my MS symptoms and passing out, I came across this small, yet informative study. It is significant to me because I was diagnosed with syncope before being diagnosed with MS.

          My cardiologist says that my syncope is neurological and my neurologist says that it is a heart related problem. Hmmm?

          Any way, check it out to see if this article can shed some light on your issues.

          Scope
          Dx PPMS 2010

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            #20
            MS and fibro

            HI CAN ANY ONE PLEASE HELP ME I WAS DIAGNOSED WITH MS WHEN I WAS 29IM NOW NEARLY 55YRS I ALSO HAVE FIBRO MY PROBLEM NOT BEING JUST PAIN BUT ALSO THE PAST 5YRS IVE NOT BEEN ABLE TO OPEN MY BOWELS WITH OUT MEDS PLUS A IRRAGATION UNIT SOME TIMES I FEEL LIFE'S NOT WORTH LIVING .

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              #21
              I am so so sorry. I do not have the bowel problems that you have but I can empathize as I have other bowel/bladder issues. Have you talked to your neuro or other doctors?

              RRMS in 95, on Gilenya

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                #22
                I was just thinking have you consulted w/ a urologist and a chiropractor? I hope you will get more help soon.

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                  #23
                  my experience

                  My fibro was dx in 2003, and only because the MS was only suspected at that time. The Rheumatologist said if the MS diagnosis was positive, he would never dx fibro but would conclude that the pain was from MS!

                  Then in 2008, the MS was finally confirmed. I have asked the MS specialist several times since about the "fibro" pain. He said it's likely to be caused by the MS. He also said the pain is often very similar between the two and difficult to differentiate (if there even IS differentiation). Of course the sleep issues and fatigue cross over between the two, also.

                  My pain is treated with morphine because I also have a bladder condition called Interstitial Cystitis and nothing else touches that pain, so the morphine treats it all.

                  And whatever the cause of the pain, it has taken over my life. I have barely enough stamina to finish a work day (even with 2 daily doses of Provigil) and then I'm done. I can't do anything more, and my poor 13 yeast old daughter suffers because of it.

                  Sigh.... I'll never really have a life again!
                  MamaDuke

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                    #24
                    MS + FMS + TN

                    I should've kown - our life is still so much the same . Nothing new for us, just that I had to stop working 11 yrs ago. About the dx of fibro, my original neuro (RIP) was sure all of my never-ending pain was fibro - "MS doesn't cause pain" - so he had me checked by the fibro expert who said I definitely said I had that as well .

                    One of the gp'ies at our local clinic said that it was/is MY pain and the lables don't really matter.

                    Whatever . . .

                    Feel good ,
                    Maris

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                      #25
                      Both MS and fibromyalgia are inflammatory diseases. I have found that trying to eat a anti-inflammatory diet does wonders for the pain. Hope this helps.

                      Susan

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                        #26
                        From a newbie

                        I have been diagnosed with Fibromyalgia 4 years ago. The first 3 years were too much. I was in and out of the hospital and doctors couldn't just get it right. I have found similar forum sites really helpful. I am new here so I hope to share and learn from everyone.
                        New Mexico Health Connections

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                          #27
                          Originally posted by wendyjames2 View Post
                          I have been diagnosed with Fibromyalgia 4 years ago. The first 3 years were too much. I was in and out of the hospital and doctors couldn't just get it right. I have found similar forum sites really helpful. I am new here so I hope to share and learn from everyone.
                          I also have Fibro & MS. Plus degenerative disc, Osteopenia, scoliosis, plus a few more painful diseases.

                          Wondering what meds you are on? What are your symptoms?

                          Laura

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                            #28
                            New fibromyalsia diagnosis

                            Yesterday I was dc with Fib. I am a 57 yr old female dx with M. S. In 1999 not fun

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                              #29
                              Thank you for this post

                              I was also diagnosed with fibro and MS. My dr in ny gave me a meyer cocktail twice and wow did it make me feel almost normal for the first time in 2 years. Now since I moved to Georgia I cant get it. its only vitamins and minerals.
                              I didn't know others suffered with this and it sure makes me feel better to know im not alone in this. I also wondered if the Ms was causing all of it but since others have the same problems and the 2 dxs I don't have to be so confused. So thank you for posting about this

                              Comment


                                #30
                                Question

                                Originally posted by twasabug View Post
                                I was also diagnosed with fibro and MS. My dr in ny gave me a meyer cocktail twice and wow did it make me feel almost normal for the first time in 2 years. Now since I moved to Georgia I cant get it. its only vitamins and minerals.
                                I didn't know others suffered with this and it sure makes me feel better to know im not alone in this. I also wondered if the Ms was causing all of it but since others have the same problems and the 2 dxs I don't have to be so confused. So thank you for posting about this
                                Hi, There must be some way to find out what was in the (meyer cocktail) as I have never found hardly anything that helps my pain and I can not tolerate most of the painkillers on the market now.
                                Thanks
                                PEACE
                                Tortis

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