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Old Member that's back to help

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    #1

    Old Member that's back to help

    [INDENT[/INDENT]
    I like short and sweet.
    I am an RN (cardiac intensive care) but had to step down when my MS became too advanced to keep up with such a demanding environment.
    I still work, desk job, in performance improvement.
    I'm here to help anyone.
    I had symptoms for 15 years before being diagnosed in late 2005.
    Please contact me...maybe I can help
    Disabled RN, Cardiac Intensive Care
    Dx'd 11/03/2005, Sx's for 15+ years prior
    STOPPED DM's 10/15/2010, last one, Tysabri

    Don't ask for a better life, ask to be a stronger person!
    Tags: None
    #2
    Welcome back! Sorry you had to step down from your previous job, but hope you still find the desk job fulfilling. I'm sure many members will benefit from your knowledge. Thanks for offering your help to us!

    Be well,
    Kimba

    “When you change the way you look at things, the things you look at change.” ― Max Planck

    Comment

      #3
      glad to be here!!!

      The first time I came to this site, I was newly diagnosed, scared, despite being an RN.
      My return to this board some...easily 5+ years later is that I want to try to help!
      I became an RN for that reason. and others.
      But, I'm hoping that both my clinical knowledge coupled with my personal dealings with MS will help someone towards a better outcome!
      Disabled RN, Cardiac Intensive Care
      Dx'd 11/03/2005, Sx's for 15+ years prior
      STOPPED DM's 10/15/2010, last one, Tysabri

      Don't ask for a better life, ask to be a stronger person!

      Comment

        #4
        Good for...

        you brother goose I'm sure we all will benefit from your experience. Welcome back !

        Comment

          #5
          Welcome back Annie! The more nurses on this site the better!
          I worked in CT ICU briefly, but my husband is a Cardiac Surgeon, so we didn't want to work together too much. It is a hard job and I respect you for it! Glad you came back to help. I had to stop working too due to my MS. It was a hard decision, but a good one.

          See you around!

          Lisa
          Disabled RN with MS for 14 years
          SPMS EDSS 7.5 Wheelchair (but a racing one)
          Tysabri

          Comment

            #6
            Your education and experience will certainly be appreciated around here. Great to have you around. Welcome!

            Comment

              #7
              Hi, welcome back, sorry you're here. : p I noticed on your sig that you're "off DMs." Does this mean that you don't take any disease modifying medication at all? I've been reading about the sub-clinical effects of MS and it scares me to death. I'm not taking any meds right now because I'm trying to get pregnant but I cringe at my brain being actively devoured. Doesn't this frighten you too?

              Comment

                #8
                interesting "name"

                When I was first Dx'd, I was put directly on Betaseron. WOW! Being an RN, I gave injections all day!...WAY different when it's yourself! !! =O
                After 2 1/2 years, I still felt like I was slipping away. Tysabri got the OK again, so, I swtched. Unfortunately, it has a max doses advisory. I begged my neuro to "exceed" it. After 35 , once a month infusions, I didn't care for anymore LP's and the co-pays for MRI's, so I just said no more. I want my quality of life the focus,
                About 3 months later, a "fog" I didn't realize existed, lifted. .. I like having my mind back!!!...even though I am more aware of how "bad" I am.
                Am I concerned about not being "protected"?
                ABSOLUTELY NOT!!!!
                I don't believe those can help me now. Personal choice completely! If you feel "better", than do it! I felt better off.
                That's all I have to say...
                Disabled RN, Cardiac Intensive Care
                Dx'd 11/03/2005, Sx's for 15+ years prior
                STOPPED DM's 10/15/2010, last one, Tysabri

                Don't ask for a better life, ask to be a stronger person!

                Comment

                  #9
                  new member, 30+ years with MS

                  I'd had active RRMS for 13 yrs. when a neuro talked to me about Betaseron in 1993. We decided to "wait and see." I never had another severe attack after that. My next visit was 10 yrs. later, when I had my first MRI. I have several lesions in my spine, fewer in my brain -- my present neuro said I have "lucky" MS (not benign) because I have no disability from them. If I'd started the Betaseron in 93, it would have gotten the credit for the change in my disease.

                  Now I'm 62 and I've had symptoms varying in intensity ever since diverticulitis last fall precipitated a series of surgeries. I'm being encouraged to start a DMD, and once again I'm reluctant. I feel the change now is probably progression to SPMS, and would probably not be helped by any of the current drugs. I wish it were easier to make this decision -- anyone have a crystal ball they can loan me?

                  Comment

                    #10
                    to DM or not DM?

                    I'm sorry, I do not have a crystal ball, though, I don't think it would've mattered.

                    PLEASE! Don't take this as gospel. I say do what feels "right" to you!

                    I am SO sick of people telling me what I can and cannot do!!

                    My "specialist" Neuro keeps asking me to be on a DM. My quality of life vastly improved after stopping DM's and neurotin (morontin).

                    That is MY take, everyone should do what feels best for them!


                    Sorry if I don't answer your question. The only answer lies with the individual! It's YOUR life!
                    Disabled RN, Cardiac Intensive Care
                    Dx'd 11/03/2005, Sx's for 15+ years prior
                    STOPPED DM's 10/15/2010, last one, Tysabri

                    Don't ask for a better life, ask to be a stronger person!

                    Comment

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