Questions about Baclofen Pump

[dethomas70]

I am new to this site and I am looking for info on baclofen pump. Been on oral baclofen for 3-4 years but the spasticity still severly effects my walking. My neuro has suggested the pump. Just wondering if anyone has any experience with the pump.

[rdmc]

Hi,

I have a pump. I went to search and pulled up a couple older threads to get you started. Lots of input from different folks with pumps...after reading these you'll probably have more questions, so ask away. I was full of questions too when they mentioned the pump...the first thread is my original one asking for info on the pump, and everyone was so gracious in giving me input...it's a 5 page thread, so it might take you awhile to get through it. The other threads are more recent with people inquiring about the pump.

http://www.msworld.org/forum/showthr...=baclofen+pump

http://www.msworld.org/forum/showthr...=baclofen+pump

http://www.msworld.org/forum/showthr...=baclofen+pump

http://www.msworld.org/forum/showthr...=baclofen+pump

http://www.msworld.org/forum/showthr...=baclofen+pump

[dethomas70]

Baclofen pump

Thanks for the links. I will check them out.

[hunterd]

I love my pump! It has greatly reduced my spacticity. Check out the liinks rdmc listed for you. Thank you rdmc!

[dethomas70]

Baclofen Pump

I have read almost every post regarding the Pump. I believe that this device could help out tremendously. I've been wearing a Ness L300 for the last year to help with foot drop. It has helped somewhat but I think my problems are more spacticity related.

I use to be very athletic but due to my lack of mobility (specifically stiffness in legs) I don't do much anymore besides swim. Anyone have information on the Pump and playing golf? Will the twisting motion interfere with the pump?

I just want to get back to doing some of the things that I used to love to do and feel normal again.

[rdmc]

I have read almost every post regarding the Pump. I believe that this device could help out tremendously. I've been wearing a Ness L300 for the last year to help with foot drop. It has helped somewhat but I think my problems are more spacticity related.

I use to be very athletic but due to my lack of mobility (specifically stiffness in legs) I don't do much anymore besides swim. Anyone have information on the Pump and playing golf? Will the twisting motion interfere with the pump?

I just want to get back to doing some of the things that I used to love to do and feel normal again.

Bob would be the one to answer that. I think I remember him saying he had no restrictions, and he's a "wild and crazy guy" (sorry Bob, couldn't resist) But seriously he's written about the activities he's been able to participate in with his pump.

I do have restrictions with mine, but it may have to do with body type. I had my catheter come out and migrate to my abdomen. The neurosurgeon wasn't quite sure how that happened, so this go round they've put some restrictions on me which include angles I can bend, or twist.

Also a few montns ago my pump seems to have decided to abandon the pocket that was made for it, and is sort of free floating. My neurologist says this happens sometimes, no foul, no harm, as long as the port to refil stays accessible, and mine is. So I wear a binder most days and it keeps it in the right spot. But like I said, I'm short, yet long waisted, and I think my body might have done better with had a smaller pump. But these inconveniences are nothing compared to the relief I get.

Also the good news is they were evidently having issues with pump catheters, and they've developed a new one.
http://www.medtronic.com/patients/se...eter/index.htm

Another place you might want to look for information is to the Yahoo web forum called Pumpsters. Lots of folks on there with lots of experience with the pump (not all baclofen, a lot of folks with pain pump, but medtronic pump nonetheless.

[dethomas70]

Pump

Thanks for all of the info. I have read most of Bob's posts. I hope he reads some of mine. I am going to try and schedule the trial for February. Got to wait for insurance deductibe to be met. One tysabri infusion will take care of that.

I am a small frame guy, 5'8 148 pounds. I hope I can handle the larger pump. I don't care how it looks cosmetically. They can put it on my forehead as long as it works.

Thank you so much for this information. I have never had any surgery or any illness until ms diagnoses 12 yrs ago. I am very fortunate that my only symtoms are the spactisity and occasional bowel problems. That being said the thought of surgery is kinda scary.