Hey, Im 31yrs old married with 2 children. 2 months ago I went to the ER with left face paralysis. Thought it was a stroke cause it runs in my family. The neuro on call had me in for a mri within 3hrs and told me it was MS, done spine tap ,all came bad positive except myelin sheath test. Got excited for awhile thinking they were wrong but unfortnately not. Found 3 small lesions on left side of brain and one large on right side(2cm x 1.8cm)from researching myself they call this a tumefactive lesion.. Ive never had any symptoms to do with ms up til my face paralysis.
Went to my first neurologist appointment 4wks ago and my dr says its my 1st attack but still wants to start me on treatment right away and to put me on gilenya. Was in the middle of my pretesting ,got a tooth infection and a week ago suffered another attack,this time my left leg weakness and foot drop.The large lesion was enhancing again,my neurologist said it was unusual for this to happen. never really got a full explanation on this yet from her. I know its all new to me and its gonna take awhile for me to understand..
I got a call from the infusion nurse yesterday saying that they were discussing my treatment and now want to put me on tysabri,confused why they want to change it, are they keeping something from me!!scared me reading up about the side effects. Was talking to my mum on the phone this eve and she says they call tysabri in ireland the miracle drug..
Im looking forward to learning from everyone and hearing about your experiences.
Went to my first neurologist appointment 4wks ago and my dr says its my 1st attack but still wants to start me on treatment right away and to put me on gilenya. Was in the middle of my pretesting ,got a tooth infection and a week ago suffered another attack,this time my left leg weakness and foot drop.The large lesion was enhancing again,my neurologist said it was unusual for this to happen. never really got a full explanation on this yet from her. I know its all new to me and its gonna take awhile for me to understand..
I got a call from the infusion nurse yesterday saying that they were discussing my treatment and now want to put me on tysabri,confused why they want to change it, are they keeping something from me!!scared me reading up about the side effects. Was talking to my mum on the phone this eve and she says they call tysabri in ireland the miracle drug..
Im looking forward to learning from everyone and hearing about your experiences.
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