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Swollen feet/legs anyone?

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    #16
    I found a for my bubble feet at least.

    My husband used to rub my feet all the time however as the year has passed so had his feet rubs (due to too much pain etc)

    However after my last post i decided to get out of bed and get on the recliner. I told my husband about my feet and that i had found a post about it online, i then went on to say how they feel like they’re popping and that it might have something to do with my circulation, he then said let me try something...

    So i lifted my legs onto his and began his work. now when he started my tiny feet looked like huge red balloons and very painful.

    At the first touch of his hands i felt pain, so i asked him to do it lightly. It was so light, almost a wee stroke infact. After about 2 mins of him lightly stroking my foot the burning and pain had gone, i looked up only to find my balloons had deflated. It took on total around 15-20 to get my foot and ankle back so I asked him to do my other foot. This foot was much bigger and almost a purple colour. Coz this one was really saw he went even more gentler, but again it worked.
    That was three days ago now and he has done the same for me now every morning coz of this I am now able to walk and be with the kids again, it’s great.

    As I said I along with everyone in this forum would love to say they have found a cure for something but this time I feel I really have for this symptom I just hope I aint making it worse lol

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      #17
      i use compression stockings and they are a great help. If i am not careful and keep the lymphodema under control i tend to develop cellulitis (infection in the skin) and have required IV antibiotics for this on more than one occasion so now it is something i work hard to manage. I initially went to see a physiotherapist who specialised in lymphodema and he saw me daily for progressive pressure bandaging ( they use a 4 layer bandage system a bit like the profore systems that are used for people with leg ulcers) and once the swelling was down as much as possible and things were stable he fitted me for compression stockings (Sigvaris 30-40mm/hg) and they have done well. Even so if i have a few busy days and cannot spend some time during the middle of the day with my leg properly elevated it will start to swell a little - if it gets a little too much then i go back to the compression bandaging to get them back down and make sure i spend more time with my leg elevated - and it is definately true that up on a bed is far more effective than a recliner or lift chair. I have an electric bed and can raise the leg portion so that i get really good drainage.

      i get frustrated by this too as there are times when i feel good enough to be out an about more but if i spend too long sitting in my wheelchair even though i have elevating leg rests my leg balloons. I was in manual chair this week and felt really good so decided to do some sewing instead of having a lie on the bed in the afternoon, and that was enough to make my leg swell quite a bit more. I still work partime at present but can only manage 3 days per fortnight and then only if spread apart for the same reasons- very frustrating!

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        #18
        I haven't been on here in a long while and I see this is an older thread with a recent post.
        I have the same problem. My feet are permanenly bent in a sitting position and I am wheelchair bound. I too take Lasix with litle results. What does work for me are form fitted velcro compression wraps made by Bioform. Without them, my calves balloon to 16" in two days. With them, my calves stay at 13". I wear them 24/7. They only come off for an hour every other day so my wife can wash the legs and check for any open wounds. I have been wearing them for four years now. I also sleep with my feet elevated on a foam wedge every third night. When I get up in the morning, my toes are normal size. But this only lasts for a couple of hours and then the fluid returns to the toes,
        swelling them up again. My PC likes the idea of the fluid moving away from the toes for awhile at night to prevent it from becoming stagnant and more receptive to infection.

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          #19
          Not usually, but last week after lots of walking on my DC visit, my ankles were really swollen. So bad that when I got home, dh noticed them. Thank God I do not usually have this [problem. I think it was just from walking so much, but I will keep an eye on it. Every day there seems to be a new sx for me.

          JudySz

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            #20
            This certainly is a problem for us who are forced to sit most/all of the time. It's doubly difficult to try some of these things, even going to physical therapists, etc., when there's nobody else to help out. Talk about feeling "stuck"! I don't know what the answer is, like everything else associated with MS, but it does help knowing others have the same situation.

            Take care

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              #21
              Can't get the tet socks on

              The nurse is so right about the diaretics. I need to take them but it takes out my potassium so I'm on mega doses for that.
              Recently my diaretics were increased and then I got gout in my feet (big ouch) from having too much uric acid in my blood.
              I'm up and down all day so what I have that works for me is a huge air pillow under my knees at night.
              This doesn't take away all my edema but it makes it managable.

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                #22
                Thanks foggyrose,

                My mother is a saint, through and through. She is my dad's primary caregiver and is also looking after her aging parents, who are still living in their own home. which basically means she is running two households.

                I can still get around and work fulltime. My symptoms are more along the line of fatigue and numbness in my hands and arms. I still work and my husband is amazing.

                But my mother is a saint, no doubt about it.

                hope you are well,
                Jill

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                  #23
                  thanks for the info....

                  I have been having a problem with ankle/foot swelling for the past 3 wks., just in the last few days I noticed the back of my leg is wet, it's sore. I'll call my Dr today....infected? I'm going to try something under my feet, so my legs don't dangle and elevating them in bed. I too sleep some nights in a recliner because I can't turn in bed, or get up myself.....I hate MS too

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                    #24
                    take diosmin it's sold online or natural food stores. ms can i've learned affect our circulation. it's helped me greatly. takes about 30 days to become very affective. i swelled all the time before it took this stuff. it's great.
                    Jen Dx'd 5/11
                    "Live each day as if it were your last"

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                      #25
                      Leg swelling prevention

                      Leg swelling generally occurs because of an abnormal accumulation of fluid in the tissues of the lower extremity. The medical term for leg swelling from excessive fluid in the tissues is edema.

                      Foot, ankle and leg swelling is common with the following situations: Prolonged standing, Long airplane flights or automobile rides, Menstrual periods (for some women), Pregnancy -- excessive swelling may be a sign of pre-eclampsia (a serious condition that includes high blood pressure and swelling; sometimes called toxemia), Being overweight, Increased age, Injury or trauma to your ankle or foot.

                      Leg swelling may be a sign of heart failure, kidney failure, or liver failure. In these conditions, there is too much fluid in your body.

                      Other conditions that can cause swelling to one or both legs include: Blood clot, Leg infection,Venous insufficiency (when the veins in your legs are unable to adequately pump blood back to the heart), Varicose veins, Burns including sunburn, Insect bite or sting, Starvation or malnutrition, Surgery to your leg or foot

                      There are many ways you can do help prevent leg swelling to occur. Try to increase your mobility. – Do not allow yourself to stand or sit for long hours during work or when traveling. Try to move as much as you can. Also, keep a normal body weight. Obesity predisposes a person to having venous problems because of the pressure on veins to pump more blood. Exercise, keep an active lifestyle and wear compression stockings. Compression stockings are proven to help prevent the occurrence of spider veins and varicose veins, as they promote good circulation in the lower legs.

                      I personally wear compression stockings every day to keep my legs healthy and keep it vein free. I wear the least compression unless problems persist, but so far I’m happy with it. It helps regulate blood flow and they feel like your regular stockings. If you are working and are use to wearing stockings, I highly suggest wearing one with compression. I buy my compression stockings online at Legs Therapy. They have a wide range of brands and style to choose from at a very good price.

                      I hope I’ve shared enough information to help you in any way.

                      Good Luck!

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                        #26
                        try this

                        A yoga pose where you lay on the floor and get your butt as close to a wall as possible with your legs straight up. Stay in that position for about 10 minutes. I do this occassionally when I have help getting up. Actually it's kinda comfortable.
                        [I]Tellnhelen
                        Progressive Relapsing MS

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                          #27
                          Painful!

                          I, too have terrible swelling in my legs. I did notice that while in the hospital last spring(Melanoma in my fourth toe. It was amputated) that the swelling did go down while in bed.

                          I have taken a strong diuretic and it keeps me in misery on a daily basis for about three hours.
                          To add to this miserable state, bladder spasms and general pain in my back, I find that the swelling does not lessen.

                          I have also had water blisters form upon occasion on my legs.

                          Compression stockings just hurt, so I bandage my legs with ace bandages. Pretty they are not, but, temporarily effective.

                          I would try and stay in bed more, as suggested, however, I can only sleep or rest on my back. As a result, my already numb extremities become painful.

                          I do think I will try to get into our rocking chair and rock myself, maybe this will help the circulation.
                          I am wheelchair bound and hopefully I can stagger into the rocking chair effectively! Transferring out can be a challenge, however, I am determined to master this in order to try to make my life easier!

                          Mind you, I did not have this degree of swelling, congestion, blisters and general ugliness until I was hospitalized last Spring! I have been assured by the powers that be that one has absolutely nothing to do with the other.
                          Just Saying....It is what it is!

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                            #28
                            So now it appears I didn't have cellulitis after all, instead have "weeping edema". The pressure of the "water" part of the blood sitting in the capillaries in my lower legs, has no where to go except out into the tissue and eventually the skin breaks open and the fluid comes out. Totally gross!!! The home health nurses came out once a week for two months to change the bandages...........Unna boots and an Ace bandage over it. They don't look very attractive, but seem to work well for me. The swelling goes down and all the open places have healed.

                            They discharged me this Wednesday, but I have the feeling they'll be back in the future for the same problem. Having to sit and be immobile all the time is sure a bummer. Also I've been told to elevate my legs as much as possible. Just got a new powerchair, a Quantum 600, used, it had 11 miles on it so the price was alot lower than new! It reclines all the way back and can lift my legs higher than my heart. Get really dizzy for awhile, but it does seem to help the swelling in my legs/feet.
                            :thumbs_up

                            Isn't it amazing how this miserable disease keeps throwing new challenges at us? Have an appointment with a new neurologist Jan. 25 and am hoping for something new. Probably the same old, same old, but one can hope!!!

                            Happy New Year everyone!

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                              #29
                              Swollen Ankles

                              I found this treatment for swollen ankles in a magazine.

                              If you are physically able to get on floor and back up (which I am not), this exercise for swollen ankles might work for you:

                              Lie on the floor, rest your legs against a wall and slowly rotate your ankles in circles for two minutes. Next, massage your calves, rubbing down toward your heart for two minutes before standing.

                              Since I'm unable to get on floor, while in bed I raise my leg by holding it up with my hands. From this position I can do the ankle circles and massage.

                              Doing this exercise, watching your salt intake, wearing compression stockings and elevating while sitting can alleviate painful, swollen ankles. Hope this helps.

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                                #30
                                Getting down on the floor and back up again, walking, etc, isn't possible for some. I'm full time wheelchair. I find elevating my legs in my power chair helps with swelling.

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