Baclofen pump question...help
I am looking into getting a baclofen pump but my MS doc said it doesn't work for anything above the waist so no point. I have straight leg rigidity and up to above my waist...and then tight muscles in my arms and hands for the past three months too. Can no longer roll over in bed because I can't bend my knees even manually anymore.
Anyway, did anyone notice loss of stiffness above the waist? Or ability to open and close stiff fingers, etc.? I appreciate all the info. on this thread! You folks were brave to get the surgery...it scares me to death, but if I take enough Baclofen to ease the rigidity the weakness is too much for standing during transfers and I'm too sleepy to function. I didn't mean to hijack this thread but didn't know if it was the right thing to do to open a whole new thread...
I am looking into getting a baclofen pump but my MS doc said it doesn't work for anything above the waist so no point. I have straight leg rigidity and up to above my waist...and then tight muscles in my arms and hands for the past three months too. Can no longer roll over in bed because I can't bend my knees even manually anymore.
Anyway, did anyone notice loss of stiffness above the waist? Or ability to open and close stiff fingers, etc.? I appreciate all the info. on this thread! You folks were brave to get the surgery...it scares me to death, but if I take enough Baclofen to ease the rigidity the weakness is too much for standing during transfers and I'm too sleepy to function. I didn't mean to hijack this thread but didn't know if it was the right thing to do to open a whole new thread...
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