I was diagnosed with RRMS is 2010, so we know I have MS.
13 days ago, I was leaning to grab something on the floor of my car, and it felt like my hips and legs were vibrating down through my legs (primarily my left leg) down to my feet. Not an electric shock, exactly, but a vibration that lasted a few seconds and then petered out. I could reproduce this sensation at will by bending my chin to my chest. I bend, it lasts for a few seconds, then slowly stops until I lift my head and bend again.
A couple of days later, I noticed that I didn't have to work as hard to get the sensation--my neck didn't have to bend as much to produce it, and the effects were stronger when it happened. I called the neuro, and six days later had an MRI of my c-spine (I can usually get in more quickly, but the imaging centers were backed up).
I'm still having the same issue to this day, and while it's no longer getting worse, I accidentally trigger it dozens of times a day. I can live with it, but it's annoying, and absolutely new to me. It sounds like Lhermitte's sign, but I'm not a doctor, so won't call it with certainty.
MRI results came back; no new damage on my cervical cord, so it's not a relapse, per the neuro. I have an appointment with him in two weeks (I'm also on the cancellation list) because I want an explanation, from him, of how I can have a completely new and reproducible symptom that is still fully present after ten days (and may have been there longer for all I know), and yet it not be a relapse.
What do you guys think? Can the MRI have missed something? Could it be something else entirely? I don't see how this could be a pseudoexacerbation, since it's a completely new symptom and I'm on day 13 of having it with no illness, fever, etc. It's a real symptom, and something must be causing it. I don't want steroids, but am unsure of how to proceed with my neuro. In almost every way he's a great, responsive doctor, but he is absolutely black and white when it comes to MRIs, and this concerns me.
13 days ago, I was leaning to grab something on the floor of my car, and it felt like my hips and legs were vibrating down through my legs (primarily my left leg) down to my feet. Not an electric shock, exactly, but a vibration that lasted a few seconds and then petered out. I could reproduce this sensation at will by bending my chin to my chest. I bend, it lasts for a few seconds, then slowly stops until I lift my head and bend again.
A couple of days later, I noticed that I didn't have to work as hard to get the sensation--my neck didn't have to bend as much to produce it, and the effects were stronger when it happened. I called the neuro, and six days later had an MRI of my c-spine (I can usually get in more quickly, but the imaging centers were backed up).
I'm still having the same issue to this day, and while it's no longer getting worse, I accidentally trigger it dozens of times a day. I can live with it, but it's annoying, and absolutely new to me. It sounds like Lhermitte's sign, but I'm not a doctor, so won't call it with certainty.
MRI results came back; no new damage on my cervical cord, so it's not a relapse, per the neuro. I have an appointment with him in two weeks (I'm also on the cancellation list) because I want an explanation, from him, of how I can have a completely new and reproducible symptom that is still fully present after ten days (and may have been there longer for all I know), and yet it not be a relapse.
What do you guys think? Can the MRI have missed something? Could it be something else entirely? I don't see how this could be a pseudoexacerbation, since it's a completely new symptom and I'm on day 13 of having it with no illness, fever, etc. It's a real symptom, and something must be causing it. I don't want steroids, but am unsure of how to proceed with my neuro. In almost every way he's a great, responsive doctor, but he is absolutely black and white when it comes to MRIs, and this concerns me.
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