I started Tecfidera several months ago. I too was excited to say goodbye to a needle. With the only major side effects being flushing and possible digestive issues, I thought it would be great. From the beginning, I've had weird side effects...
At 240 mg 1X per day - I would not only experience flushing, but would get real itchy for about 20 minutes...
My neurologist suggested a low dose asprin, which helped...
When I tried the full dose of 240 mg 2X's per day - my body seized up and I thought I was having an exacerbation...
Instead of calling for a round of steroids, I tried backing own my dose to the 240 mg 1x per day again...
It seemed to work well, but I noticed a lot of hair falling out after my shower
When my neurologist told me a few weeks ago that in trials, the half dose was not effective, I decided to try the full dose every other day...
Not only am I tightening up again after only 1 week, but my hair is falling out/thinning at an alarming rate...
I was also happy to read that I was not the only person who has been experiencing the leg cramps and numb hands at night...
I am not continuing with this med - it is not working for me...
I am so thankful to this website and the many participants who said they were experiencing some of the things I've gone through - with the Rx company only talking about the side effects of the flushing and digestive issues, I thought I was going crazy...
At 240 mg 1X per day - I would not only experience flushing, but would get real itchy for about 20 minutes...
My neurologist suggested a low dose asprin, which helped...
When I tried the full dose of 240 mg 2X's per day - my body seized up and I thought I was having an exacerbation...
Instead of calling for a round of steroids, I tried backing own my dose to the 240 mg 1x per day again...
It seemed to work well, but I noticed a lot of hair falling out after my shower
When my neurologist told me a few weeks ago that in trials, the half dose was not effective, I decided to try the full dose every other day...
Not only am I tightening up again after only 1 week, but my hair is falling out/thinning at an alarming rate...
I was also happy to read that I was not the only person who has been experiencing the leg cramps and numb hands at night...
I am not continuing with this med - it is not working for me...
I am so thankful to this website and the many participants who said they were experiencing some of the things I've gone through - with the Rx company only talking about the side effects of the flushing and digestive issues, I thought I was going crazy...
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