I had my neuro appointment yesterday. He thinks I should stay on Ty despite the respiratory infections. My titer is .11 so still negative. He didn't see any advantage to stretching out infusion schedule, as he said no studies to support it. And he pointed out that both with the stretch in later fall/early winter and now, I was missing infusion every other month and still got sick.
So he'd rather still get the stretches where I stay healthy and get it every 28 days and if I miss a month, so be it. Since I have tolerated the medicine and it has slowed progression, he thinks worth staying the course. He is not a fan of the risks/side effects of Gilenya and Aubagio, but would go with Aubagio if I force it.
He did recommend working with primary to coordinate seeing ENT and getting pulmonary testing to rule out contributing causes. I just have to stay healthy enough to get tested
So he'd rather still get the stretches where I stay healthy and get it every 28 days and if I miss a month, so be it. Since I have tolerated the medicine and it has slowed progression, he thinks worth staying the course. He is not a fan of the risks/side effects of Gilenya and Aubagio, but would go with Aubagio if I force it.
He did recommend working with primary to coordinate seeing ENT and getting pulmonary testing to rule out contributing causes. I just have to stay healthy enough to get tested
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