When I started this process I received a phone call from a nurse affiliated with Gilenya Fingolimod, as they present themselves. She began to rattle off a litany of things things that I could expect and told me I didn't need to worry about writing anything down I would receive a packet a packet in the mail. She proceeded to tell me who my Navigator would be and she would be contacting me shortly.
Well as promised the Navigator contacted me and started telling what to expect with the process as far as my choices of where I could go to have my tests done. Right off the bat it was contradictory to what the nurse had told me. So the nurse called me back and cleared everything up.
I went to the facility that Novartis pays for the tests to be done. My eye doctor was scheduled for this coming Monday which I had to pay for.
On Wednesday I called my Navigator to see if my insurance had approved my claim for Gilenya. She told me it had been denied and she was going to call my Neuro's office on Thursday to see if they were going to appeal the denial. I specifically told her she HAD to call BEFORE 12:00 CDT or she would miss them. I called her back Thursday and spoke with another gentleman at 1:30 EDT and he said she was at lunch but she had a note to call when she got back from lunch. I told him to tell her don't bother to call they are gone for the day. He said he would make sure she called Friday before Noon CDT. Well I called today to follow up at 3:30 EDT and she still had not called. The lady I spoke said I could call my doctor I told her knew that but she said she was going to do that and I expected her to do what she said she was going to do.
I told her may reconsider even taking Gilenya. That took her by surprise. Of course she asked why so I told her what all had taken place from the first day. I asked her what is going to happen if I have a problem with drug and I have to call am I going to get this kind of service? Because if I am I'm not interested. We ended the conversation with telling her to tell my Navigator not to worry about calling my Neuro I'll call them first thing Monday morning.
I'm sorry for the long post but needless to say I was not a happy camper. I expect people to do what they tell me they are going to do. And follow the instructions I gave them. All she had to do was that and everything would have been fine.
Has anyone else experienced these kind of issues? I have about had my fill. If you read the whole post thank you.
Well as promised the Navigator contacted me and started telling what to expect with the process as far as my choices of where I could go to have my tests done. Right off the bat it was contradictory to what the nurse had told me. So the nurse called me back and cleared everything up.
I went to the facility that Novartis pays for the tests to be done. My eye doctor was scheduled for this coming Monday which I had to pay for.
On Wednesday I called my Navigator to see if my insurance had approved my claim for Gilenya. She told me it had been denied and she was going to call my Neuro's office on Thursday to see if they were going to appeal the denial. I specifically told her she HAD to call BEFORE 12:00 CDT or she would miss them. I called her back Thursday and spoke with another gentleman at 1:30 EDT and he said she was at lunch but she had a note to call when she got back from lunch. I told him to tell her don't bother to call they are gone for the day. He said he would make sure she called Friday before Noon CDT. Well I called today to follow up at 3:30 EDT and she still had not called. The lady I spoke said I could call my doctor I told her knew that but she said she was going to do that and I expected her to do what she said she was going to do.
I told her may reconsider even taking Gilenya. That took her by surprise. Of course she asked why so I told her what all had taken place from the first day. I asked her what is going to happen if I have a problem with drug and I have to call am I going to get this kind of service? Because if I am I'm not interested. We ended the conversation with telling her to tell my Navigator not to worry about calling my Neuro I'll call them first thing Monday morning.
I'm sorry for the long post but needless to say I was not a happy camper. I expect people to do what they tell me they are going to do. And follow the instructions I gave them. All she had to do was that and everything would have been fine.
Has anyone else experienced these kind of issues? I have about had my fill. If you read the whole post thank you.
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