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    #1

    Information seeking

    Hi Everyone! AGES ago, there was a list that explained what lesions down the length of the spinal cord and on the brain would affect if it were damaged. I am looking for that information again. Does anyone know what I am talking about or have a link for it? I would like to print it off for reference.

    Thanks!
    DX w/NMO Nov. 2012
    (Mistakenly DX w/MS March 2008)
    Tags: None
    #2
    Hi prairiegirl,

    Long time no see I hope you are doing well

    I know the list/thread you are speaking of. I believe it is long gone.

    After some years I came to learn and realize much of it, in reference to, the spinal column did not "fit" for MS. It did, however, seem to correlate to back and neck injuries.
    Diagnosed 1984
    “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

    Comment

      #3
      Hi Snoopy!
      Darn! I REALLY wanted to have that info.

      I have been rediagnosed with NMO recently. After years of feeling that the MS diagnosis was off, mainly because I was not responding to treatment and because I had never met anyone like me who had major spinal cord lesion damage, but a clean brain.

      I attended an NMO information day last fall after having 4 ON attacks between Feb and July last year. I got a consult with an NMO specialist and voila! I was tested 4x for NMO, but I am one of those that tests false negative. I meet all the other diagnostic criteria.

      I hope you are relatively well.

      I guess I am going to have to scour the internet and see if I can find that chart. I am working with med students and it would be super helpful.
      DX w/NMO Nov. 2012
      (Mistakenly DX w/MS March 2008)

      Comment

        #4
        If we are talking about the same list a MSWorld member had compiled the information listed in it.

        I do know were you can get it, I posted it on another forum a long time ago (with permission from the member who originally took the time to research and write it up.

        I believe I can post the link to the forum but doubt I can post the actual thread were it can be found.

        The forum is NeuroTalk:
        http://neurotalk.psychcentral.com/

        I or someone else can direct you to the list you are seeking, if you need help

        I do remember you had your doubts about the MS diagnosis and those with NMO were trying to help you.

        It's good to know you received a correct diagnosis (MS vs NMO) since it is important to receive the proper treatment.
        Diagnosed 1984
        “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

        Comment

          #5
          Hello Prairiegirl,

          For the most current and up to date NMO information please visit the Guthy-Jackson Charitable Foundation for NMO Sepctrum Disorders Research. They have one of the most comprehensive library's of NMO scholarly literature on the web. As research has progressed, the research community has been discovering that the differences between MS and NMO are more pronounced than the similarities. It's not MS and can't be looked at from an MS perspective.

          One of the differences is that while MS lesions are most often peripheral (outside of the cord), NMO lesions are most often central (inside of cord) transverse lesions. In the case of both diseases, however, any function at or below the lesion site can be affected.

          I'm sorry to hear that your diagnosis has changed to NMO. Did you attend the GJCF NMO Conference last fall in Los Angeles? I've attended for the last three years and it's been a very beneficial experience for me. They still have open registration for the 2013 Conference, and it would be wonderful if you could attend.

          Grace (NMO+ since 2005)

          Comment

            #6
            To add to my above post. Although the initial brain MRI is usually clean, the research community has known for some time that there is a percentage of patients who will indeed develop brain lesions. In one study, that number was 62% of the participants.

            Comment

              #7
              You can google brain and spinal cord maps to see what functions are controlled where. There are actually a lot of sites with that information available. You might have to go through a few to find the ones that put the information in a form you find easiest to read.

              It's best to stick to sites by medical groups or disease support foundations. Over the years the lists I've seen posted in forums by well meaning individuals who made the lists themselves usually contain errors. Some of the lists I've seen would be funny if they weren't so sadly wrong. There was one I saw a long time ago that said that the eyes were controlled by the cervical spinal cord. I hope that isn't the list your looking for!

              Comment

                #8
                Is this it?

                http://neurotalk.psychcentral.com/thread3436.html
                “Be careful about reading health books. You may die of a misprint.”
                ~ Mark Twain . . .Or a typo on the Internet. Srsly.

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                  #9
                  OMG! That's the bad list I was talking about! It has the eyes and optic nerves controlled by the cervical spinal cord! It has all kinds of head functions controlled way down in the cervical spinal cord! So unfortunately wrong it's funny.

                  PLEASE nobody use that list! Ever!

                  Comment

                    #10
                    As I make my way through the volumes of information on line trying to teach myself about the intricacies of the CNS, I've seen some remarkable "ideas". This stuff isn't that easy to learn on the fly. I'd say though, whoever put that list together put a lot of work into it.

                    P.S. misprints and type-oh's. . . are the greatest cause of illness in modern history. . .
                    “Be careful about reading health books. You may die of a misprint.”
                    ~ Mark Twain . . .Or a typo on the Internet. Srsly.

                    Comment

                      #11
                      Although I was doing great for 20+ years, my spinal cord injury was mis diagnosed for about 4 months. I was fully ambulatory and within about 2 months was in a wheel chair.

                      To an MS specialist, everything is MS. Well eventually the Cervical spondolis was discovered, I had spinal fusion, and am still trying to recover.

                      My MS remains under control.

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