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Day 2 of diagnosis

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    Day 2 of diagnosis

    Hi. I don't really know what to do with myself. I'm normally really active, and now I need to rest for a 1/2 an hour after getting a glass of water. How long does this last?? I want to be active and keep moving - but I've been told to rest and not push myself...Trying to find a balance. I've been experiencing numbness and tingling in my hands mid-section and the right side side of my head/face. All super new and I have an awesome team of doctors and follow up appts. with an MS specialist and a neuro-opthomologist. I just have so many questions! Any tips/words/advice is very much appreciated. Thank you....

    #2
    Hi and welcome to the board. Sorry that we have to meet here but you are in the right place. If you have questions,likely there is someone here who can offer some suggestions. I'd like to offer some.
    First, MS has no cure. the way that you feel fatigue is always going to be that way. The various pains and tingling, etc will be there always, more or less. The best you can do is manage the symptoms and that means many changes in what you do. You should read as much as you can on this site about diet and exercise. Good luck

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      #3
      Welcome Etaylor! So glad you found MSWorld and that you have good support system with your doctors. That is crucial. I just want to clarify what Jerry says here.
      Originally posted by JerryD View Post
      the way that you feel fatigue is always going to be that way. The various pains and tingling, etc will be there always, more or less. The best you can do is manage the symptoms and that means many changes in what you do. You should read as much as you can on this site about diet and exercise. Good luck
      While I truly agree it would be best talk to your doctor about managing your symptoms and have a healthy diet and exercise routine, I don't believe it's true that the fatigue, pain and tingling will always be there! Each of our MS courses can takes different paths!

      I have been living with MS for 23 years. For the better part of those years, I have been pain free and without tingling/numbness. Now I have constant numbness in toes and fingers, but please remember - We are all different! I am hoping your pain can be treated and ease up, and you do find that balance you are working towards!

      Keep your chin up! Come back often!
      1st sx '89 Dx '99 w/RRMS - SP since 2010
      Administrator Message Boards/Moderator

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        #4
        Well, to start off, you're on day two of your diagnosis. For the time being, let the Docs do the work and try not to worry or stress out about it.

        Yeah, I know. That isn't so easy but work at it. Even if you don't have MS, worry and stress won't be doing you any favors.

        If what you have is MS, there are meds you can take for the fatigue and many of them really can knock down the effects. Let your Doc make that call once you're diagnosed.

        You'll find a lot of opinions and experience on these boards. Try to ignore most of them for the time being. You're too early into the diagnosis part and your Docs REALLY need to take an honest look at you and see you (and your symtoms) as you are, not as what we think you are. Making the picture they see more complicated won't do you any favors.

        So, just chill and let the folks in the white coats earn their money. We'll be here when you need us.

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          #5
          Nearly everyone on this board experiences most of the symptoms that you posted originally. And all of the advice you heard, here, is posted with the best intentions. But you need to keep yourself aware. I also want you to remain hyper aware of your doctors' advice and treatment.
          I want you to be aware that I have found this board to be full of 'patients helping patients'. I think you need to find out some things about your basic health that are sometimes not taken very seriously by the 'regular' medical people. Find out your vitamin D and vitamin B-12 levels. This is done through a simple blood test. You should also be monitoring your hormone levels. You can ask your medical team about this stuff. Don't be shy. I spoke to my PCP and neurologist about LDN, which helps to modulate endorphin production, and they knew nothing about it. I found an MD who regularly prescribes it in his practice.
          MS finds a way to disturb sleep and sleeping well is the way the body recharges itself. I am trying to write some simple ideas to you. I am not a doctor. Please look over this site and take what you can from it. Good luck

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            #6
            You're not the same person you were last week. Give yourself some time to rest. Lots of rest for longer than you think you need. It's the most important thing now.

            You'll be yourself again in the future, but you really need to rest and know that this really happened. You will get through it, but you can't force it.

            Good luck and begin to find out about the disease.

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