Hello. Well, it's been almost a year since I first posted here. Thought I was DX by my doc, thought MS was a 'yep you have it, here is your treatment' type of disease...boy was I naive.
A year later, still have lesions on brain, numbness, tingling, electrical shocks, drop foot, muscle weakness, problems writing, typing, thinking and talking at times. I have 'officially' dx of Optic neuritis, peripheral neuropathy, disturbance of skin sensation and as of today, Demyelinating disease of the central nervous system. But my neurologists (plural, I have 2 now, a general and a MS specialist), my GP, and my Rhuematologist are at mixed feelings about MS.
SOOOO, I am currently taking neurotin, nuvygil, and cymbalta. (cymbalta is also for anxiety, a condition most women on my fathers side of the family have) Now they added Imuran. I'm a bit unsure of it all. My docs have explained that basically, my immune system is attacking my central nervous system, they just can't pinpoint where.
Does any of this sound familiar? Does anyone take the Imuran? I'm worried about it, but the neurotin and nuvygil (taken for the last 6 months) have been amazing. I still feel numb and tingling, but at least it's not so severe that it's waking me up at night. (at least not most nights, lol).
Thanks.
Heather
A year later, still have lesions on brain, numbness, tingling, electrical shocks, drop foot, muscle weakness, problems writing, typing, thinking and talking at times. I have 'officially' dx of Optic neuritis, peripheral neuropathy, disturbance of skin sensation and as of today, Demyelinating disease of the central nervous system. But my neurologists (plural, I have 2 now, a general and a MS specialist), my GP, and my Rhuematologist are at mixed feelings about MS.
SOOOO, I am currently taking neurotin, nuvygil, and cymbalta. (cymbalta is also for anxiety, a condition most women on my fathers side of the family have) Now they added Imuran. I'm a bit unsure of it all. My docs have explained that basically, my immune system is attacking my central nervous system, they just can't pinpoint where.
Does any of this sound familiar? Does anyone take the Imuran? I'm worried about it, but the neurotin and nuvygil (taken for the last 6 months) have been amazing. I still feel numb and tingling, but at least it's not so severe that it's waking me up at night. (at least not most nights, lol).
Thanks.
Heather
Comment