New to the Forum

[SweetSydney]

Hi,

I'm new to the forum. I have MS. It was a long road to my diagnosis-but I was finally diagnosed 11/11/2011.

My MS Specialist reviewed my symptoms list, and said I have had MS since 1998.

Sydney

[22cyclist]

Welcome to the site SweetSydney! Many of us here can relate to having possibly had MS years before we were diagnosed once we are diagnosed. I hope you like your MS specialist, or at least trust him/her.

Check out our site and ask some questions if you have some, or answer some others with your wisdom of a year in it. We also have a good Chat board if you want to talk in real time.

Hope this note finds you well.

Take care
Lisa
Moderation Team

[SweetSydney]

Thank you very much for the welcome, Lisa.

Yes, I like & trust my MS Specialist very much.

She was an answer to the prayers of many in my church.

She is very kind, and compassionate.

My DH told me, when she 1st saw my spine, he said she looked like she wanted to cry. I weighed 72#s at 5.2.

MS took my appetite away.

Sydney

[tracibk]

welcome!! This is a great place!!

[SweetSydney]

welcome!! This is a great place!!

Thank you for the welcome!

I am looking forward to finding my way around, and getting to know other members.

Sydney

[Camsue]

Hi Sydney

Welcome! Glad to hear you have supportive people in your circle.

Take care

[SweetSydney]

Welcome! Glad to hear you have supportive people in your circle.

Take care

Hi, Sue.

Thank you so much for the welcome!

Sydney

[JustAGirlWithAnInvisibleIllness]

Welcome! I am new as well. Glad you finally got your diagnosis, but not happy you have MS.

[SweetSydney]

Welcome! I am new as well. Glad you finally got your diagnosis, but not happy you have MS.

Thank you so much for the welcome!

I was actually thankful to get my diagnosis-I know that probably sounds strange. Not happy to have MS though.

Welcome to you, as well. I think we've found a great place.
I'm not happy that you have MS either.

Sydney

[MyGirlsMom]

SweetSydney, welcome to the MS World family! It is a great source of information and inspiration for me...I hope you find so too.

I don't see that mentioned often, but I too lose weight during flares. My diagnosing exacerbation caused me to lose almost 15 percent of my body weight...it is just too hard and painful to eat or go to the bathroom. Some people would comment on how great I looked, but I knew I looked way too skinny. I'd rather look and FEEL healthy.

Best wishes to you.

[SweetSydney]

SweetSydney, welcome to the MS World family! It is a great source of information and inspiration for me...I hope you find so too.

I don't see that mentioned often, but I too lose weight during flares. My diagnosing exacerbation caused me to lose almost 15 percent of my body weight...it is just too hard and painful to eat or go to the bathroom. Some people would comment on how great I looked, but I knew I looked way too skinny. I'd rather look and FEEL healthy.

Best wishes to you.

Thank you for the welcome!

I lost weight in '06-dropped down to 74#s & I had managed to regain 6#s, only to lose it again.

I'm just not hungry & I've had the complication of developing Lymphocytic colitis, so now my diet is very bland.

Yes, like you, I still get those silly compliments on how great I look.

Sydney

[mjan]

A warm hello to you, Sydney! I like your user name!!

I wondered why you didn't get diagnosed till now. I am sorry for all you may be going through.

Let us know what you need from us. Ask questions, vent and you'll gain information and support.

You can post on the General Q&A section as there are more folks there to respond.

Keep us posted as to how you are doing if you like, and know that we'll walk this journey along side you.

Warmly, Jan

[SweetSydney]

A warm hello to you, Sydney! I like your user name!!

I wondered why you didn't get diagnosed till now. I am sorry for all you may be going through.

Let us know what you need from us. Ask questions, vent and you'll gain information and support.

You can post on the General Q&A section as there are more folks there to respond.

Keep us posted as to how you are doing if you like, and know that we'll walk this journey along side you.

Warmly, Jan

Thank you, Jan. My 'username' comes from my Sweet Sydney, my "Heart & Soul" Yorkie, whom I lost on February 28th, 2011....8 & 1/2 months before I was finally diagnosed.

I had an 'initial' diagnosis, in 2008, but my former Neuro got cold feet, after a neuromuscular neuro at Cleveland Clinic said she didn't 'see' MS, in the 15 minute appt.

(I wasn't there for an MS evaluation.)

I was extremely fortunate to have a spine specialist, examine me in the summer of 2011, and call a MS Specialist and talk to her on my behalf.

I have MS "without visible lesions".

She went over symptoms and determined I've had MS since '98.

People in my family tend to get diagnosed in our 50's.

Sydney

[aitch10]

Hi and welcome, Sydney!

You're not alone. I was DX'd 10.5 years ago but my neuro reckons I've had MS for 25 years or so.

[SweetSydney]

Hi and welcome, Sydney!

You're not alone. I was DX'd 10.5 years ago but my neuro reckons I've had MS for 25 years or so.

Hi, Aitch.

From other forums, I've learned that neuro's seem to be afraid to diagnose MS.

When my former neuro got cold feet, and retracted my MS diagnosis, he said, "I don't want to label you with something that is for the rest of your life".

(As if I didn't know. )

He knew that my 2nd cousin had lived with MS for 18 years.
Unfortunately, when he was diagnosed, there weren't any DMD's, and his MS progressed quickly.

Sydney

He died March 10th, of 2008 at the age of 66.