Announcement

Collapse
No announcement yet.

Question for Myoak about JCV test

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Question for Myoak about JCV test

    Myoak I have read a couple of your posts and you seem to be quite knowledgeable on this subject while I am quite confused on this subject.
    My results from my blood work have left me with the confusion. The report says I tested "Low level positve for the JC antibodies" yet it does not give a Titer level. The report did say a more detailed report is to follow at a later date.
    After reading your reply to a post by KSL I called my Neuro's office and was told the follow up report had not come in. While talking to the nurse she read the report to me and it that I was "indeterminate". So now you can imagine how much more I am confused. You said in your post that a Titer lever of .33 is actually negative. So I wonder why the report would say I am "Low level positive"?
    If you would be so kind to shed some light on this for me I would most appreciative. I understand you are not a medical professional, at least I assume, but as I said you seem to be very knowledgeable on this subject. Thank you for any help you can be!
    Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

    It's hard to beat a person that never gives up.
    Babe Ruth

    #2
    Hi Waydownsouth,

    I looked back at what I said concerning a titer of .33 in my post to ksl… “KSL, you did not test positive with a .33 titer; a .33 titer falls in the category of indeterminate.”

    I didn’t say .33 was negative; it is indeterminate.

    Here are the guidelines again:
    Index Interpretation Recommendation

    >0.40 Positive A specimen with an index value of > 0.40 is positive for the presence of antibodies to JCV.

    Indeterminate: A specimen with an index value of ≥0.20 but ≤0.40 is considered an indeterminate result.

    <0.20 Negative* An index value of < 0.20 indicates that no antibodies to JCV were detected.


    I have no speculation on why or how you can be both low level positive and indeterminate on the same test. The best source for explanation is your doctor. I doubt if a nurse would be able to clarify.

    Every person is unique. Doubtless there are several good reasons why your doctor prefers one med over another for you. I encourage you to write down your questions for him and discuss meds until you achieve peace in your heart and mind about which med to be on.

    That way you can “buy in” so to speak and both of you will be on the same page. This is important because there is a benefit to harmony versus the stress of conflict.

    If, after thorough discussions with your doctor you are not satisfied then ask for a reference where you could go to achieve your treatment goals. He will understand. If your current doctor is the only one reasonably available (geographically) then your choice is limited. You will have to work harder to mesh well with this one.

    You are paying this guy for his expertise. Don’t be afraid to let him do his job; especially if you feel confused or unsure. Hopefully, you are seeing a MS specialist. I believe there is just too much going on in MS for the average neuro to keep up with. But here again, you may be limited geographically.

    Life and circumstances (explanations too) are never perfect. We accept that and live as best we can with all the imperfections.

    MS is so difficult. I realize you may be struggling with a treatment decision; nothing is more difficult for patient and doctor. Don’t allow stress or worries to rob you of peace. This will all work out. Talk it through with your doctor; he will be pleased with such discussion for partnered decisions.

    Best to you!

    Comment

    Working...
    X