Just diagnosed .... Looking for some ms friends

[Nic.c]

Hello everyone
I'm Nikki 26 years old, live in Ventura ca married for almost 7 years and have 2 beautiful children, sons 9, daughter will be 2 this month.. I was diagnosed June 29th however it was more of a confirmation since ms was on the table since me first MRI. Than a month and a half of crazy testing spree and whala it's ms. I thought I hurt my neck and back really bad in August of 2011 .. I was cleaning the house and moving stuff around and my legs went tingly and weak ( I would still walk but not run) than a few days later the left side of my scalp, neck, shoulder, arm and hand went tingly, numb, itchy as hell and I had no strength and limited motor function in my arm or hand. Went to the ER , did a CT said it was unexplained numbness. Went to the doctor a month later and she was not on top of anything, could not get ahold of her so I switched in April 2012 after my body gave out in so much pain and she wouldn't return my calls. My new doc got the ball rolling and here we are.
I start copaxone this wednesday, I have a very odd sence of humor and joke a lot. It's how I handle things, had the MS nurse in tears because I was making her laugh so hard. Would love to talk or find others like me!!!!
Nikki

[heliotrope]

Welcome! Good luck with starting copaxone. The nurses are a great help!

[Nic.c]

Thank you very much!!! I have to say it scares my the least out of all my options for drug choice. I told the nurse I feel its the end of the world, and the only way for survival is joining one of 4 gangs ( the 4 options for medication my Nuro gave me ) and I was getting jumped in this Wednesday hahahaha I know it's sounds messed up and it honestly isn't a joke but at the end of the day humor is what gets my by... and my kids...

[Seasha]

Welcome to MSWorld, Nikki!! So glad you found us! You might be interested in also connecting with people who are newly diagnosed here. There is a forum called Limbo Landers and Newly Diagnosed and within that forum is a weekly thread called Rest Area 51, Newbies Lounge run by gomer. Here you will find friends who have the same questions and issues that you can relate too also.

Of course, please feel free to enjoy and use ALL of MSWorld!

[Nanobaby]

Welcome Nikki! I think your sense of humor is awesome!

[Cat Mom]

Hi Nikki and nice to meet you, an odd sense of humour is still a sense of humour! I hope COpaxone is good to you and you start feeling better soon.
Jen

[Nic.c]

Nano baby .. Thank you...I try ...
Cat mom.. Thank you and it is a sence of humor just making light of a serous situation I guess.. I hope it works for me too. I never fully recovered from my first flare up so we will see...

[jojo18]

laughter is the best medicine. because of my MS, I walk at 4 mph (weird, I know.) so when walking with friends, they are always lagging far behind me. I just tell them to keep up with the cripple.

and I like the gang analogy. it would have made me laugh if i wasn't so tired right now.

well, I hope you find comfort in your gang. the one good thing is that you won't be killed if you leave and decide to join a different one.

i've been in 8. lol

[Nic.c]

Hahahaha jojo18 thanks.. Your an OG ( original gimp ) like me Hahahahahahahahaha my left hand is gimpy never fully recovered from my first flare up... Hopefully my jump in Hahahah won't be to bad and who know if I need to switch the other "gang" might find out I was a copax first and make it harder for me.. Hahahahahahahahaha

[Jamie29]

Hey Nikki, Thank you for makeing me laugh. I also use humor as much as I can. The girls that I work with have all been so supportive and when I make a mistake or can tell my words are slurring I usually play the "Ive been drinking" act.

I am 29 and a mother of a 7 month old. I am married to a man who is trying to be suportive but lets face it he is a man they just dont really know how lol. I have just been offically diagn on 07/23/2012 but have known sence middle of june. I went to the neuro in town where I live and felt like he thought I was crazy explaining all the symptoms I was having. I then decided to go to phx and go to a MS specialist and LOVE LOVE LOVE my new Dr. Also helps that he is pretty good looking for an older dr type! He also gave me some options of "gangs" to joine and I felt most confortable with copaxon. Im alittle nervous of giving myself a shot every day (although I have tattoos) and hope that it becomes a routine just like anything would.
Do you have facebook? (silly question who dosnt??) keep us posted on how the treatment is for ya!!!

[JoeS]

Originally Posted by Jamie29

I am married to a man who is trying to be suportive but lets face it he is a man they just dont really know how lol.

woah, hey, men can be supportive!! what about that time... er no. Alright, that one time when... hrm. Alright, zero examples, but we can be supportive!

Anyways, Nikki, hope the Copaxone is going well!

[poohkers]

Welcome Nikki!

I have been on Copaxone for 13 years. I love it and will not change it unless it stops working for me. I am doing great for the length of time I have been sick. If you have any questions feel free to ask, when I first started I had no one to talk to . Dr. said just google MS and figure it out. Nice...!

Take it one day at a time...

[Nic.c]

@ jamie29..your welcome.. I say if I can make one person laugh a day about my MS I'm doing my job.. Hahaha well I was "jumped in" to copaxone on July 18th.. So it's almost the 2 week mark and I have to say I'm really doing ok... I have tattoos too and have never been afraid of needles, but it was still a bit intimating.. I kinda have a habit of google mind F'n myself.. Hahahaha but than I get over it hahaha
So I guess I can say its been ok so far.. I manually inject, gives me a bit more control over how fast the medication goes in..And the auto injector scares me a bit.. Hahaha It's does sting a bit, like when you put alcohol on a cut.. I give myself the shot at night around 7 go outside after out a ice pack on it and just relax for 20 min. The sting is normally gone and I just had a big red spot, a small bump and a few welts on some spots but they don't itch.. It all goes away with in a couple of hours and I'm just sore in the spot for a day or two.. The stomic I'm sore the longest.. But it's ok.. Just remember to breath slowly and take your time... I do have a Facebook, it's Nicole crook Kotz... But I don't know if you can search for me but if you find me add me ... Hope you have as good of luck with your gang as me.l hahahaha
Pooh jerks.. Thank you very much.., if anything comes up I will definitely ask...

[jojo18]

same reaction as me Nic.c. cept i used the auto for copax. didnt for rebif though.