re the PML case after TYSABRI and then GILENYA

[agate]

Welcome, James!

What a shame that this happened to you. You must have been through a bad ordeal. I hope your recovery goes along fast and smoothly--and that you'll get only good MRI results too.

Take care, and best wishes.

[hotwing]

James,

I would first of all like to say that I am thrilled to hear that your a fighter and doing everything you are to beat this.

You have been so kind in sharing the information about your situation with everyone. I personally am so grateful to read and gain knowledge about your personal experience.

I wish you continued improvement and great success each day and a full recovery.

Next week I will take my last Tysabri treatment and then I plan to take a break with no medication for a short period in hopes of BG-12 this fall. I have been on Ty for 3 yrs now and with the new FDA guidelines I have decided that it is time to stop my journey with Ty especially since I have 2 of the risk factors for PML that puts me in the 1/250 group for PML.

Thanks again for sharing your personal experience with us and keep us posted with your progress.

I wish you all the best,
Robin

[jimbobjox]

Hi all, first of all thanx soooo much for all your support and posts, I really am overwhelmed by such a response from all of you and I just want to say many many thanx for all your prayers, good thoughts and that you all also recover from this crazy ms stuff.

As I said I'd response after the 28th May, I saw my head Nuerologist team today with my friend Judy and in a nutshell got some positive feedback... I am having an updated full on MRI scan this Wednesday (sped up-yay) to see the results, after that I will be in hosp for a few days on steriods and then start a lower dose of Betaferon injections, they will monitor how the progression takes place.

I am very hopeful that an operation takes place re my constant numbness of hands since late 2006, that is if I get the all clear on the MRI. My Nuero said I should get my leg strength back in particular as that is my number 1 choice.

Until then I will update you all, in the meanwhile, I sincerley do hope all goes extra well for you all, and that you are all feeling better...thanx again and God Bless You All, Amen oxoo

[hotwing]

JAMES,
I WOULD LIKE TO THANK YOU AGAIN FOR POSTING AND UPDATING EVERYONE ABOUT YOUR STATUS AND TREATMENT PLANS.

IT IS GREAT NEWS ABOUT THE POSITIVE FEEDBACK FROM THE DOC. KEEP IMPROVING!!!!! SOUNDS LIKE YOU AND YOUR DOC HAVE A GOOD PLAN AHEAD...

GO TEAM JAMES...
STAY STRONG AND KEEP FIGHTING...

Originally Posted by jimbobjox

Hi all, first of all thanx soooo much for all your support and posts, I really am overwhelmed by such a response from all of you and I just want to say many many thanx for all your prayers, good thoughts and that you all also recover from this crazy ms stuff.

As I said I'd response after the 28th May, I saw my head Nuerologist team today with my friend Judy and in a nutshell got some positive feedback... I am having an updated full on MRI scan this Wednesday (sped up-yay) to see the results, after that I will be in hosp for a few days on steriods and then start a lower dose of Betaferon injections, they will monitor how the progression takes place.

I am very hopeful that an operation takes place re my constant numbness of hands since late 2006, that is if I get the all clear on the MRI. My Nuero said I should get my leg strength back in particular as that is my number 1 choice.

Until then I will update you all, in the meanwhile, I sincerley do hope all goes extra well for you all, and that you are all feeling better...thanx again and God Bless You All, Amen oxoo

[REG53]

Hello jimbobjox,

I am happy to hear you got some good feedback from your neuro and I pray you keep improving and thank you so much for keeping us informed.

Saying a prayer for you.