Has anyone here heard of or know of someone that has been diagnosed withe CLIPPRES syndrome?
After 6 years with the term of demyelinating disease be used as a diagnoses for my condition. My Neuro has finally found through a conference with other Neuros that what I have is called "CLIPPERS syndrome". I am wondering if anyone else here has the same diagnosis? Here is a link to Dr. Sean J. Pittock of the Department of Neurology at the Mayo Clinc in Minnesota. http://www.ncbi.nlm.nih.gov/sites/en...22%5BAuthor%5D Once you get to the site, in the search type "Pittock SJ"[Author]CLIPPERS. I would love to talk to you, if you're out there.
After 6 years with the term of demyelinating disease be used as a diagnoses for my condition. My Neuro has finally found through a conference with other Neuros that what I have is called "CLIPPERS syndrome". I am wondering if anyone else here has the same diagnosis? Here is a link to Dr. Sean J. Pittock of the Department of Neurology at the Mayo Clinc in Minnesota. http://www.ncbi.nlm.nih.gov/sites/en...22%5BAuthor%5D Once you get to the site, in the search type "Pittock SJ"[Author]CLIPPERS. I would love to talk to you, if you're out there.
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