I finally got in to see my neurologist on Thursday, and (since the IV steroids did absolutely nothing for my earlier flare) he wrote a script for ACTHAR gel injections.
What he DIDN'T tell me was how outrageously EXPENSIVE it is. Funny, b/c he made no bones about how expensive my Provigil is (...current flare makes it basically useless).
So....I'm waiting to hear back from Curascript to see if they can get it ok'ed with my insurance. In the meantime, I'm still suffering from a really bad flare (extremely weak, barely able to care for myself, much less my family). I'm wondering if it is worth all that money; if it will actually work to help me out of this second (rebound?) flare.
Has it helped any of you?
What he DIDN'T tell me was how outrageously EXPENSIVE it is. Funny, b/c he made no bones about how expensive my Provigil is (...current flare makes it basically useless).
So....I'm waiting to hear back from Curascript to see if they can get it ok'ed with my insurance. In the meantime, I'm still suffering from a really bad flare (extremely weak, barely able to care for myself, much less my family). I'm wondering if it is worth all that money; if it will actually work to help me out of this second (rebound?) flare.
Has it helped any of you?
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