new with this

[nana1968]

about five years ago I had bellspalsy and started getting these burning from the inside out feelings.....doctors just thought I was nuts..two years ago I ended up having respiratory failure and was paralyzed from the medical induced coma so the doctors said it was polyneuropathy and gave me ivig.......I could walk but still was not right...had bowel and bladder problems,chest pain and numbness and tingling....I had a clear patch in my vision so I went to my home town neurologist...he said well the mri shows a lesion in frontal lobe but its probably due to aging...repeat mri same lesion but symptoms got worse so he did a spinal which showed mirror pattern o bands..home town neuro decided to send me to ms doctor. the ms doctor did a better splicing of mri in different views and saw six lesions...2 occiipital,2 juxacortical and two periventricular...the only problem is I am not getting better the dissemination is off on one of the 2 criteria.

[Seasha]

Hi nana1968!! It sounds like you have been run through the mill and I'm so sorry to hear about all your problems. Hopefully, you will get better help now that you are with an MS specialist. Please come back often! We are a very supportive community and we welcome you.

[nana1968]

soo many questions

Neuro thinks its ms...but still is not one hundred percent sure. He's going to try avonex to see if it works. I have 2 juxtacortical lesions,2 occipital horn lesions and 2 periventricular lesions...mirror pattern o bands(blood and fluid o bands). I also get nodules and rashes too. I am really confused right now.

[JerryD]

Sorry nana,
I hit a wrong button and didn't complete my thought. I was going to say that you need to study the information on the injectables like Avonex, Copaxone, etc. If you take Avonex , what will your doctor think he will see as a result ? The drugs always claim that they have long term benefit. Maybe there is a short term benefit, I haven't heard of any. I hope the drugs show you some benefit, short term, please report that fact. I am waiting to hear it. Good luck

[nana1968]

what do you take jerry? or do you use natural supplements and if so tell me what helps I am clueless to this.

[CycleSurgeon]

Nana: After hearing your whole story, I hope the Avonex works for you. If it makes you feel bad, ask about the other DMD options like Copaxone which has few side effects in terms of physical feelings besides the injections site reactions.

I hope you start feeling better, and I hope your neurologist follows your progress closely.

Welcome, although, sorry you are here for the reason you are.

[22cyclist]

Sorry Nana: I posted under my husband's ID (CycleSurgeon). Our computer saved it. It took me a while to figure it out. So, the post before was from me. I was chatting with you under McDonald criteria before.

Take care.

[nana1968]

thanks

I will suggest copaxone I'm afraid of that also though because I read it can cause severe anxiety attacks...I am prone to them in the past and they have been so severe that I end up totally freaking out..I can't imagine taking something that will make me freak out but other than that copaxone sounds great

[hunterd]

WELCOME NANA!!!!!!! it is great to have you here, but I'm sorry why.

Here you will find a help full, caring, understanding bunch of people. We have a special forum for the undiagnosed, it is called limbo Landers and newly diagnosed. Here is a direct link to it http://www.msworld.org/forum/forumdisplay.php?f=100

[22cyclist]

I will suggest copaxone I'm afraid of that also though because I read it can cause severe anxiety attacks...I am prone to them in the past and they have been so severe that I end up totally freaking out..I can't imagine taking something that will make me freak out but other than that copaxone sounds great

Those immediate reactions hardly ever happen. I took it for years and the only time they happened to me was when I took the syringe out of the refrigerator and didn't let it warm up enough before injecting it.

It is not horrible. You know it will go away. But, like I said, it hardly ever happens if you follow the directions...don't be like me. The nurse does it with you first to make sure you are fine.

The needles are tiny and it is sub q not IM like avonex.

[nana1968]

that makes me feel way better about it. I am going for the copaxone atleast to see if it works.