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Living with M.S.

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    Living with M.S.

    I would like to share a story with you about living with M.S.
    A young man starts his adult life at the age of 18 by joining the U.S. Army and serving a 4 year tour of Active Duty as a Demolition Specialist attached as a member of the Army Green Berets, followed by 2 years in the Army Reserve as a Military Police Officer, Gets Honorably Discharged and soon after that he gets married and starts his family life and his career working as a Service Technician for a Meter, Pump and Valve Company.
    Just short of 25 years, The man was fired from his career and shortly after this, he was Diagnosed with M.S. Today, the man was told by 2 people that they didn't believe that he has M.S.? The man is going to Physical Therapy 2 times a week and feels good for the first time in a long time. He will not stop fighting M.S. and feels that he is doing all that he can to fight it!
    The gentleman that I am contacting you about is 50 years old, living with his wife of 26 years and his 3 wonderful children, a 24 year old daughter,21 year old son and an 18 year old daughter. I also wanted to inform you that the gentleman that I am talking to you about is ME!
    I am going to Physical Therapy 2 times a week, watching my diet and taking my vitamins every day along with my daily injection of Copaxone. I would like to do something to help this disease, but I'm not sure how I can help?
    I wish that a cure will be found and I would like to help out in some way! Please contact me so we could chat about what I can do. M.S. is a nasty, bad disease and I wish that it could end!
    Thank you for letting me share my story.
    Sincerely,
    William M. Bolger

    #2
    Bilb: Wow! What a story! Thank you for your service.

    I am sorry you are having a hard time. I have PT a couple of times a week too. I have moved on from Copaxone...to Rebif and then to Tysabri. Loved my Copaxone though. It just didn't work for me.

    There is also a military room...you would probably qualify, I don't think it is just for active duty. Gomer, another guy on here whom I talk to on email is a vet and he is a good resource. Look up his profile and contact him. He is a good guy to talk to.

    Why did the two docs say they didn't think you had MS after all these years?

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      #3
      Hi Bilb, your neighbours to the north also thank you for your service.

      How long have you been on COpaxone? It's worked great for me, I hope you also have positive results from it. You didn't say who the 2 people were who didn't believe you have MS, I hope they weren't doctors or close family members.

      You sound like you have a supportive family, that's the single most important thing that helps us deal with it IMHO. It is a horrible disease, being able to "let our guard down" at home really is healing and helps us deal with those times we have to act like nothing is wrong.
      Jen
      RRMS 2005, Copaxone since 2007
      "I hope to be the person my dog thinks I am."

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        #4
        WELCOME bilb!!!!!!! it a great to have you here, but I am sorry why. I would also like to echo my thank you for your services.

        I am not sure what will help you in your journey, but I do know that doing what you can will help you. I am sure you have heard the saying" use it or lose it", in my opinion, that applies. Good luck
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

        Comment


          #5
          Hello and welcome billb,
          I want to echo all the others in thanking you for your service and perserverance.
          You are not alone in your disgust for this disease. And I believe you are doing right by fighting. 'Once a fighting man, always a fighting man'. My hopes are that we get some type of cure, soon. Before this disease finds a way to kill me. Good luck

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