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Gilenya and weight gain?

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    #16
    I'm both happy and sad that I found this thread! I've put on about 14 pounds since starting Gilenya in November. I SO don't want it to be the Gilenya doing it! I have felt better since day one and I have the energy I had five years ago.

    I use a wheelchair for events and when my husband and I go out because it's much faster than walking and a lot less tiring. (My legs are pretty MeSsed up!) I had lost a bunch of weight and am working on losing ore. My wheelchair was chosen because it was light and easy to transport, but I was at the top of the weight for it. Since I had already lost 40 pounds, I was sure I'd keep losing and I got the chair I wanted. Now I'm stressing because of the gain, which by the way chemically hinders weight loss, and I just want to get down to where I was in November ASAP.

    I do have mild hypothyroidism and I'm going in to get that checked soon. I kinda hop that maybe the Gilenya is impairing the thyroid medication.
    -Nani
    dx 6/2011
    First symptom 4/1996

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      #17
      Yes, weight gain should have been a listed side effect!

      I started taking Gilenya in 2008 when still in the study phase. I have gained 25 lbs since starting Gilenya and I know that I wasn't the only one in the study that had commented about it being an issue. My weight has been like a yo-yo while my diet has been unchanged. I do take the drug at night as I had issues when I first started that made taking it at night optimal. I have to say that I have been wheelchair free since July 2010 and wouldn't want it any other way so I'll deal with the extra weight that I have to carry along with me

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        #18
        Feeling very fat. Thanks alot Gilenya!

        I have been on Gilenya for 6 months and gained 20 lbs. I really want to switch meds because of this. Anyone have the same issues? And if you did stop the Gilenya did the weight come off? Please help!

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          #19
          Weight Loss?

          Originally posted by GandalfRA View Post
          I lost about 18 lbs since started taking Gylenia 90 days ago. I weight the same as when I was 18 and I am 41
          I wish I had the same experience, +30lbs here after 17 months 😠
          Tracy

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            #20
            weight gain and gilenya

            I have been on gilenya since August and from august to mid-october i notice weight gain and then i lost weight back to my regular weight about +/- 8lbs.

            Hope that helps.

            I am pretty active (crossfit)

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              #21
              I've gained about 12 lbs in the year that ive been on G. My neuro thinks it's unrelated just like the depression I've been experiencing in a similar time frame. I suppose the depression could cause the gain, or vice versa or they could both be caused by G. Who knows!
              Newbie

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