1 spinal lesion

[MomCop]

Hi all, I have experienced buzxing, tingles, fatigue and feeling like my legs are jello.
My MRI showed 1 demyelating lesion one spinal cord at c4 and c5. My lumbar puncture was all normal but my doc was concerned that my WBC was 6. Normal range is 0-5, and she said most people are 1-2. I am just wondering if anyone else has dealt with this. My mri said scattered lesions in thoracic spibe as well. I am diagnosed with clinically isolated syndrome. Does this mean my one lesion with turn to more and become ms? Also why would my white blood count be elevated? I do not have HIV, vitamin b deficiency or the herpes virus or LYME. ( which could be reasons why its elevated) I'm in Limbo and I hate it!! Ugh!!!

[suziq38]

I hated being in limbo too.
I was in Limbo for a year and a half.
I had damage in my C-spine, and the surgeon hesitated doing surgery because he suspected MS. I then was off to an MS specialist to rule out MS.
I only had one severe episode. I was in so much pain that I could barely walk for a few days.
I felt tingling and numbness in my hands and feet.
I felt a sunburn sensation on my lower back.
When I tried to sleep at night, I couldn't, because I was in constant pain.

My blood work was all negative. Lumbar Puncture Negative.
My MRI showed a bright spot (damage) to my C-spine and then a swollen lumbar spine.

I was told that if I got really bad and started to lose function, to check into the ER or come into the office.

I stood up one day and did not feel my right foot. It felt as if it had "melted" to the floor. I almost fell.

I felt more pain after I exercised, and the pain went away when I tool Tylenol or Advil.

I wanted to consider the C-spine surgery, so that I would not permanently worsen. I had the surgery in 1/2011.

I felt that the c-spine stopped the progression of my condition. It allowed me to become more mobile.

It has been a rough few years, but the MS doctors finally told me that they don't think that I have MS.

While I am happy, I realize that anything can change in the future. Meanwhile, I am trying to forget about being in limbo, and enjoy my life.

Good Luck!

[22cyclist]

Momcop: Welcome to MS World. CIS or clinically isolated syndrome does not always turn in to MS. You will be watched closely to determine if you collect other lesions in your brain or spinal cord. You said you had other lesions in your cord, were these determined not to be demeylinating lesions?

Hopefully yours will shrink and disappear and you will never get MS. They see that a lot with Transverse Myelitis.

Come back often and ask and answer more questions.

Hope you are feeling better
Take care
Lisa

[Britt123]

MomCop: Perhaps the elevated WBC is because your immune system is in attack mode. Which to my knowledge is what causes MS lesions in the first place. I am also diagnosed CIS and I am still learning as well.

[Marco]

Lisa is correct, not all CIS patients develop into MS. Studies also show that being on a MS medication (DMT), may reduce the possibility, or extend the time, that CIS patients may convert to MS patients. The longer the disease is kept at bay, or locked in a closet, the more time scientists have an opportunity for scientific breakthroughs. In your case, I would discuss your medication options, ensure your vitamin D levels remain in a normal range and live a healthy life.

Use this time productively, and it will pay dividends, whether you convert to MS or not. I wish you well and hope you never become a full-blown MS patient.