Hello Everyone,
I have rrms and I am doing ok but I have been have on and off issues with my legs and I know my lesions are in bad spots. I have tried all the meds out there and I have had negative results or side effects. My last hope was tysabri but I tested jc + so after tons of research and refferals we decided that Panama was a great idea. I know there are mixed reviews out there and I know people are unsure if its worth the money but I need to be proactive, so please follow me through this journey and I promise to always be honest with my feelings and results.
Just a little background- I have had rrms for 7 years dx in 2006
I am 32, married and have a 2 year old
I have over 17 lesions in my brain and two in my spine. The ones in my spine are the worst and causing me the most issues.
I am currently doing solu Medrol infusions to help with some issues but not much is helping.
My current symptoms are leg and back pain. I occasionally feel like I am walking on golf balls. I also get fatigued and feel drained. I sometimes feel that have weight hanging from my knees and at times feel a slight stiffness in my legs. Also, at times I feel like a short walk was a ten mile hike based on how my legs, ankles and feet feel.
I will post on here with updates but you can also check out my fundraising page or email me.
I know there are some negative ideas and feeling about stem cell therapy and I am not interested in bringing in negative views or feelings into and there is no need to post mean or bad things.
I have rrms and I am doing ok but I have been have on and off issues with my legs and I know my lesions are in bad spots. I have tried all the meds out there and I have had negative results or side effects. My last hope was tysabri but I tested jc + so after tons of research and refferals we decided that Panama was a great idea. I know there are mixed reviews out there and I know people are unsure if its worth the money but I need to be proactive, so please follow me through this journey and I promise to always be honest with my feelings and results.
Just a little background- I have had rrms for 7 years dx in 2006
I am 32, married and have a 2 year old
I have over 17 lesions in my brain and two in my spine. The ones in my spine are the worst and causing me the most issues.
I am currently doing solu Medrol infusions to help with some issues but not much is helping.
My current symptoms are leg and back pain. I occasionally feel like I am walking on golf balls. I also get fatigued and feel drained. I sometimes feel that have weight hanging from my knees and at times feel a slight stiffness in my legs. Also, at times I feel like a short walk was a ten mile hike based on how my legs, ankles and feet feel.
I will post on here with updates but you can also check out my fundraising page or email me.
I know there are some negative ideas and feeling about stem cell therapy and I am not interested in bringing in negative views or feelings into and there is no need to post mean or bad things.
Comment