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Limbo Landers and Newly Diagnosed This is a place for those who are still in "limbo" and those who have been recently diagnosed with Multiple Sclerosis . A place to share your thoughts and experiences.

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  #1  
Old 08-02-2012, 07:56 AM
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JED BARTLET JED BARTLET is offline
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Smile I HATE MY LIFE!

I AM SO SICK AND TIRED OF PEOPLE TRYING TO TELL ME WHAT TO DO ALL THE TIME. COME ON! I AM NOT 3 YEARS OLD. WHY DID I GET BLINDSIDED WITH THIS?

I AM HURT AND CRY ALMOST EVERY DAY. I FEEL SO UNLOVED. AM I BEING PUNISHED. HAVE SO MUCH TO DO BEFORE I END UP WITH A NOTHING LIFE!
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  #2  
Old 08-02-2012, 08:10 AM
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1-800-SUICIDE 1-800-273-TALK
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If you need it.

I can so relate with you on this issue. I have days that I could've written exactly what you did. We won't tell you what to do, but if you need any suggestions on different topics just ask. WE ARE HERE FOR YOU.
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  #3  
Old 08-02-2012, 10:14 AM
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Chicken Mama Chicken Mama is offline
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I'm sending you a big hug. I'm sorry you are having such a tough time. This disease is tough.

Sometimes it helps to 'vent' and know that there ARE people who understand how you feel. The people here are wonderful. I hope you will post more often so we can get to know you.
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  #4  
Old 08-02-2012, 10:50 AM
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SNOOPY SNOOPY is online now
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Quote:
Originally Posted by JED BARTLET View Post
AM I BEING PUNISHED.
No JED, you are not being punished. No one who has been diagnosed with this disease is being punished.

Quote:
HAVE SO MUCH TO DO BEFORE I END UP WITH A NOTHING LIFE!
Who says you are going to end up with a "nothing" life. You can still have an enjoyable life, life is what you make it. You have MS but MS does not have to define who you are.

Take care
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  #5  
Old 08-02-2012, 11:12 AM
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ngrace73 ngrace73 is offline
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Jed, I've so been there, done that, got the tshirt. Please, please, please seek help if you're that down. *hugs from Seattle*
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  #6  
Old 08-02-2012, 01:16 PM
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Cat Mom Cat Mom is online now
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No Jed, you are not being punished, I feel for you. It's a horrible illness but it helps a lot to have people going through what you are also through, physically, emotionally and if you're so inclined, spiritually. We are a friendly, supportive, wise group so you can ask anything or just vent, cry... and even laugh, if you can believe it.

Please tell us a bit about yourself and welcome again!
Jen
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  #7  
Old 08-02-2012, 03:37 PM
techie techie is offline
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Fall WILL come! and summer will end!

I know it seems like forever.... Western Oregon is getting the 80s now and 90 over the weekend. 30 more days of August heat and 30 days in September.
If I am lucky like I have been this year the fall rains will come early.
Tomorrow WILL be a better day.
techie
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  #8  
Old 08-03-2012, 09:18 AM
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Shashi Shashi is offline
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I'm so sorry you're dealing with so much. I know it can be overwhelming and unfair at times.

Try not to hate your life though. It's the only one you've got, and you can decide if you want to spend this time being miserable or if you want to spend it being happy. Every second that we have is a precious gift. It will never come again. It's better to enjoy these moments, so that you can look back and say that you've had a good life. I've chosen to be happy, no matter what is going on in and around me. It's not always easy, but I'm determined to get the most out of this life God gave me.

Please know that you are loved. You are important. We care and God does too.

Big hugs,

Lisa
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Weird symptoms since 2006 + 5 lesions + mild ON + still no answers = Limbo anyone?
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  #9  
Old 08-04-2012, 01:04 AM
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AnnaMae7 AnnaMae7 is offline
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Quote:
Originally Posted by JED BARTLET View Post
I AM SO SICK AND TIRED OF PEOPLE TRYING TO TELL ME WHAT TO DO ALL THE TIME. COME ON! I AM NOT 3 YEARS OLD. WHY DID I GET BLINDSIDED WITH THIS?

I AM HURT AND CRY ALMOST EVERY DAY. I FEEL SO UNLOVED. AM I BEING PUNISHED. HAVE SO MUCH TO DO BEFORE I END UP WITH A NOTHING LIFE!
Jed, I can so relate to this post. I was blindsided as you said in May that I may have MS. I had no idea what was going on, where did this come from!!! June 1st I got the news it is MS.

I guess I am lucky not to be in limbo land like I have seen on here for so many, but once I started getting more info on MS I realize I've show symptoms for a while.

I had a husband that just left me, as of now I am homeless. (that's another story), but I am looking forward to a new adventure, I'm scared ******** but I know I need to go on, I was in a very dark place, put on suicide watch and all that fun stuff.

It was scary, but I was ANGRY! Why me? What did I do to deserve this?

You know what it was like to me....Grieving. Makes sense to me...I had just lost my life as I knew it and felt over. So I feel like I am going through the steps...DENIAL AND ISOLATION, ANGER, BARGAINING, DEPRESSION AND ACCEPTANCE.

I am far from acceptance and go back and forth between isolation, depression and anger a lot, but I am trying and it will get better.

Just know there are people out there that have felt the same. There are nice supportive people here. I hope it gets better
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  #10  
Old 08-05-2012, 03:38 PM
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thewildrose thewildrose is offline
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Quote:
Originally Posted by JED BARTLET View Post
I AM SO SICK AND TIRED OF PEOPLE TRYING TO TELL ME WHAT TO DO ALL THE TIME. COME ON! I AM NOT 3 YEARS OLD. WHY DID I GET BLINDSIDED WITH THIS?

I AM HURT AND CRY ALMOST EVERY DAY. I FEEL SO UNLOVED. AM I BEING PUNISHED. HAVE SO MUCH TO DO BEFORE I END UP WITH A NOTHING LIFE!
I'm with you, Jed - how can I feel so horrible every day - noone to talk to - noone to understand - no way to get the bills paid - no medical understanding except, take these drugs - tired tired tired - i've had enough!
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  #11  
Old 08-06-2012, 12:46 PM
Oceangirl4 Oceangirl4 is offline
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You are incredibly brave and strong!

First off, I have to say that I think it's amazing to even do what you did to put into words what we all feel ( hurting, being told what to do, crying) . I am not nearly that brave, and I applaud you for it! With that being said, it is clear that you are a strong person, and as much as this disease must be affecting you right now- You've got that strength in you to battle through.

No one person experiences this the same way, and you have a right to 'experience' your MS your way. But know that there are people who care, understand, and will support you along the way. How long have you been diagnosed?
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  #12  
Old 08-09-2012, 04:40 AM
gomer gomer is online now
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Jed.......... How are you doing today?

I hope things are a little better today.

Are you getting the help you need?

Just concerned about you, you are one of ours.


Gomer Sir Falls-a-lot
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  #13  
Old 08-09-2012, 10:31 AM
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Cat Mom Cat Mom is online now
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Jed, are you ok? Your post was on Aug 2... please check in. Sorry, it's the Mom in me. Let us know how you're doing.
Jen
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  #14  
Old 08-09-2012, 10:40 AM
Nash Nash is offline
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Jed how are you ?
Here you can be understood we're a familiy.
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  #15  
Old 08-09-2012, 04:16 PM
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stumblebum stumblebum is offline
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Join Date: Oct 2006
Location: New York
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Can Relate

I am so sorry you feel so alone. Virtual hugs and I hope you can find some peace soon.

I too feel as you and cry now more than ever. I don't know if that helps you, I mean knowing you aren't alone ....It's all I have right now.

Stumblebum
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