Fampyra - anyone else trying this????

[haikums]

Hi all

I haven't been here in a long time. My neuro just told me about Fampyra that was just recently approved for use in Canada. It's "Ampyra" in the states. The drug company is providing a FREE one month trial and I'm expecting delivery this afternoon.

Testing shows that it is only effective in about 40% of cases to help improve walking. I was hoping that if there are any others going to test it out that we could have a thread here to share results with others.

I'm hoping the moderator can make this a sticky post.

Stay inspired!
Michelle
brainangles.blogspot.ca

[pocoapoco]

Hi,
Ampyra may work for you right away or may not. I've been on it for 3 weeks and don't see much of a difference. I've read and heard from some people to wait about a month to see any results. I was very fortunate that I was approved for $ for the drug and I don't have to pay for it. So hey, I'm going to try it and see. Good luck

[cmthompson]

I've been taking Amprya since August 2010. My family and I noticed improvements in my walking speed after taking it 3 days. It has been covered by my insurance (except $40/mo co-pay). I have missed a few doses when I miss refilling it in a timely manner. Yes, I can tell that it does make a difference when I have missed a few doses. Hope it works well for you.

[Madison_s_Dad]

I started with Aminopyridine which is the compounded version of Fampyra over a year ago. My insurance wouldn't par for it because it was deemed "experimental". Since Feb, I've been on Fampyra which my insurance does pay (Aminopyridine = $600/year Fampyra = $7000/year) and to be honest, I haven't noticed a difference at all. I'm ppms so I'm always afraid to stop something because it might actually be working. I do seem to have worse brain fog since switching but I have no idea if it's related.