Diagnosed today /McDonalds Criteria/ Confused

[lynnepynne]

My new normal,
I want to thank you for your wise thoughts and your incredible words of encouragement.
I am kind of dumbfounded right now, your words have really hit home...
I'll simply say "thank you" and leave it at that.

Lynne

[mjan]

OH dear, HOW did I miss this thread? I am sooo sorry, but soooo very very glad you got an understanding doc!! Prayers can be answered!

AND ..she made the appt herself? OMG!!

I can appreciate your hesitation in accepting this as a full fledged diagnosis. And yes they may want more tests. BUT at least you were NOT dismissed.

When do you see this new MS doc?
Congrats for what its worth!!

Hugs, Jan

[lynnepynne]

Hi jan!
Did you see my other thread?
I tried to send you an email, it was returned! ?
It's all in there...
Let me know and I will send it again,
Lynne
p.s.: I feel pretty anxious all of the time now. Trying to sleep is not so easy suddenly. A lot goes through my head.
I have an appointment on tuesday (it's really like a little miracle!)
We shall see what happens from there.

[mjan]

Originally Posted by lynnepynne

Hi jan!
Did you see my other thread?
I tried to send you an email, it was returned! ?
It's all in there...
Let me know and I will send it again,
Lynne
p.s.: I feel pretty anxious all of the time now. Trying to sleep is not so easy suddenly. A lot goes through my head.
I have an appointment on tuesday (it's really like a little miracle!)
We shall see what happens from there.

Nope did not get it hon. It always comes with a highlighted thing I have to check to accept. I never saw it. Please..try again ok

HUGS my dear ~ Jan

[lynnepynne]

Hi jan, it was sent back to me the first time.
I just sent it again, let me know if you get it : )
Lynne

[mjan]

Yesss, sweetie got your email~!! I said all that to you, really? LOL. I always believed you'd get answers and prayed you would be treated justly..finally!! I also think the same of Shashi too!!

Please write more often ok? I am at my computer each and every day. I think about you fondly and pray you are getting the much needed support.

I lost my amazing female MS neuro and will be returning to the neuro who I saw for seizures as she is an Epileptologist. But she also see MS patients and knows my history. I could go back to my former neuro, but he's the one who saw me for 4 years, and when I had to leave his practice he said, NO, you do not have MS! See?

I understand your apprehension. Thank your day care friend from me that she spoke up in your behalf to that lady neuro..what an amazing, God-sent connection!! So deserving!! Hope you like her hubby as well.

Talk soon my "over-seas daughter" LOL

Hugs, Jan

[alishape]

When are you going to see the new doc? Please keep us posted!

[lynnepynne]

Hi Ali,
wow, thanks for thinking of me!

I am going in tomorrow and I am really scared. I did waaay too much last week and my body is a wreck (it was just bad luck, there was a big work on the house project scheduled and I really do forget that I cant do manual labour)

I am so worried about this appointment, though perhaps it's gonna be easy, who knows.
I made a time line of my symptoms as best I could, my writing is a bit affected by motor fatigue. (and there is so much, I just had to leave some stuff out!)

Well, tomorrow morning 8.00 a.m. at the MS Clinic, wish me luck!
Lynne

[mjan]

I will be thinking of you especially tomorrow. Just think, his wife probably already told him. Do you really think he's going to dismiss is wife's judgment?

Breathe.. breathe.. and remember to trust, use your faith and ask to remain calm. Maybe being worn out will help. Ya never know!!

Let us know what he says. I bet he orders more tests.

Best to you my dear~

Hugs, Jan

[lynnepynne]

My appointment is on Wednesday, not Tuesday


(better than the other way around, and missing it completely)

I also left my wallet on the counter in a department store yesterday. Was a big saga, but (blessings!) ended well.
I am feeling so woozy and confused from the gabapentin I take (600 mgs 3x a day)

Ah well, one more day of gnawing at my nails.

oy vey. It's all good.
Mjan, I am breathing! I am breathing!

greetings,
Lynne

[mjan]

Okay.. Okay.. visualize how calm you are.. breathing breathing.. slowly.. in through your nose, out slowly from you lips...slightly parted...

I know it is hard to wait and wonder. But when you start to feel so anxious, remember ALL of us here who care and are WITH YOU in spirit!!! Okay my dear?

Have your medical history and symptom list?
Bullet points. As docs do not want to read narratives.
It is really helpful. Do they have any of your medical records from before?

Hugs, my dear, Jan

[New normal]

I hv bn watching for yr post to see how u r doing. I felt like I may have over stayed my welcome by such long posts.

I credit u for encouraging me to revisit my neuro. I, too, am on 600 gabapentin...AND...tremors are lots better!!

I understand your apprehension abt the dr appt, but you know what is real...the truth is on yr side...I know you r on the right track, finally.

Prayers r with u. Pls let us know how you do. I feel like I know you as a sister warrior...I care.

[lynnepynne]

newnormal,

I felt like I may have over stayed my welcome by such long posts.

Nooooo!!! Why do you think that!?! It's all good. Sometimes I get acute bouts of insecurity on the boards because it's hard to gauge reaction, or lack thereof... (I sent you a mail a couple of hours ago, did you get it?)
Always feel safe and comfy here, please. Its the law of the land

Glad to hear you feel better!!

I, however, am perhaps in a real honest to goodness flare (or whatever) again. It'll be the 4th or 5th in 12 months. (I dont know if I can count one episode it was just widespread crap for 2 weeks)
I feel so depleted.
This "whatever" is kicking my butt: weird semi-drop foot, really bad weakness in my legs (for the first time ever my legs are so weak my knees and legs kept giving out. Often I couldnt lift me feet above a shuffle), concentration probs (like totally spacing out in the middle of a sentence), slurred speech (spasticity in my face maybe the cause?) and my TN is breaking through even though things were under control finally. Oh and my friend myoclonus is back.

Things are up and down all day long. Such a bummer. How do I always manage to forget the panic of this stuff when its all over? It is so different to the daily stuff: this stuff scares me and shakes me to the core. It also makes me sad.
Will it be like this forever?
Well, at the very least I'll have something to talk about at the dr. tomorrow

That's all for now!
Lynne

[alishape]

What did the new doc say?

Well for me, I took my first shot of copax last night. I was sooooo scared! It turned out not to be so bad. I posted about it in the newbie page, so I won't get into it all again, but it feels good to be doing something proactive instead of just waiting for something else bad to happen to me. I hope you can have a feeling like that soon!

[mjan]

For all who have been following Lynne's journey for a diagnosis, she wanted me to let you know she will be on hopefully very soon, but is not doing well after her neuro appt. He dismissed the MS once again. So she's having a tough time right now. I have been in touch with her via email. This has been very hard on her.

Just keep her in your thoughts and prayers..

Jan