New MS Blog & started Gilenya!

[MultipleMiss]

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Diagnosed in December of 2006, I have been living with Multiple Sclerosis for 4 years and 3 months…

I have been on a number of medications, ranging from traditional injections to less traditional infusions. I have been relatively silent up until now, but at long last, I’m ready to speak out.

On Tuesday, March 15th I began taking Gilenya in a doctor’s office. This was not my doctor, but that’s also for the best. My heart rate dropped slightly between the 5th and 6th hour of the observation, going from 84 to 74 beats per minute. However, it rose back to 84 bmp. During that hour I experienced a headache and some light-headedness. Still, the relief that followed was enormous.

Just this week my husband carried the IV pole that sat looming in our bedroom to the basement. I hope it stays there forever. Today was my 8th dose of Gilenya, and after 4 years and 3 months, I am beginning to have hope : )

I wish to share this journey with you. Whether you also have MS, know someone who has the disease, or have a disease of your own…we all struggle with something. This is my story.

[KoKo]

Hello MultipleMiss

Welcome!

Just this week my husband carried the IV pole that sat looming in our bedroom to the basement. I hope it stays there forever. Today was my 8th dose of Gilenya, and after 4 years and 3 months, I am beginning to have hope : )

Glad to learn that you are feeling hopeful with your switch to the oral DMD Gilenya!

Wishing you all the best!

Take care,
KoKo