Just celebrated my 65th! Last year I rode my own motorcycle down the Oregon coast with my DH of 42 years. I now have tremors so bad that I have had to use a cane in public the last two weeks.
I am not diagnosed. I have had numerous symptoms and "episodes" for thirty years. My previous posts tell "my story".
I was referred to a MS specialist last December from a GI dr because of my odd bowel habits. She sd I was "probable" & scheduled me out a yr.
Then 6 mos later I developed tremors in my rt arm/hand. I went back to the neuro who again "interrogated" me like I was a terrorist......referred me to a tremor neuro to determine if my tremors are "physiologic or physochenic".
Meanwhile, a speech path sd I had tremors in my vocal cords, tongue, face, and the tremors have at times of stress taken over my whole body and I have halted stammering speech.
Perhaps I am overly sensitive, but I felt the tremor neuro also treated me a little indifferent until he did the physical exam. My knee jerk narrowly missed his crotch, which I swear was not intentional tho my husband still believes I was releasing some hostility.
I have numerous lesions, but not enhancing...neg EVP, neg LP. My GP says my history and symptoms are classic MS.
My tremor neuro dx with physiologic tremors and started me on gabapentin. Not Parkinson's. I got immediate relief. My brain felt better, and tremors improved. But not lasting. I am now up to 900 mg per day and most tremors are controlled. I still hv tremor in my Rt hand/arm but can walk.
Most of my other "MS symptoms" have resolved except extreme fatigue and muscle weakness. Finally, end of story. Apologize for length.
I have not posted in this area but realize that u folks are the best resource. I hv been researching late onset MS, even tho in my heart I believe I hv hd this since I was 30.
I have deteriorated dramatically in 10 months. I wonder if I should just go with this or continue to pursue a MS dx. I don't think there is much to do for me anyway at my age.
I hv a swim spa and spend hours in the water swimming or floating as it controls my tremors. I wonder if that is sufficient for tx, since at least it does not have side effects other than REALLY wrinkled skin.
I hv really enjoyed reading this forum...one,you all hv walked the walk, two, it is much more difficult for you to share.....three,you all have value --- we all learn from you..rant or no rant you contribute to all of us...
How great it is we have a means to hear from you who otherwise would not have a voice....I LOVE reading yr posts...maybe those closest to u don't recognize your value, but there is an entire world out here who really appreciate hearing from you....
So sorry for the length.....would appreciate any thoughts.....
I am not diagnosed. I have had numerous symptoms and "episodes" for thirty years. My previous posts tell "my story".
I was referred to a MS specialist last December from a GI dr because of my odd bowel habits. She sd I was "probable" & scheduled me out a yr.
Then 6 mos later I developed tremors in my rt arm/hand. I went back to the neuro who again "interrogated" me like I was a terrorist......referred me to a tremor neuro to determine if my tremors are "physiologic or physochenic".
Meanwhile, a speech path sd I had tremors in my vocal cords, tongue, face, and the tremors have at times of stress taken over my whole body and I have halted stammering speech.
Perhaps I am overly sensitive, but I felt the tremor neuro also treated me a little indifferent until he did the physical exam. My knee jerk narrowly missed his crotch, which I swear was not intentional tho my husband still believes I was releasing some hostility.
I have numerous lesions, but not enhancing...neg EVP, neg LP. My GP says my history and symptoms are classic MS.
My tremor neuro dx with physiologic tremors and started me on gabapentin. Not Parkinson's. I got immediate relief. My brain felt better, and tremors improved. But not lasting. I am now up to 900 mg per day and most tremors are controlled. I still hv tremor in my Rt hand/arm but can walk.
Most of my other "MS symptoms" have resolved except extreme fatigue and muscle weakness. Finally, end of story. Apologize for length.
I have not posted in this area but realize that u folks are the best resource. I hv been researching late onset MS, even tho in my heart I believe I hv hd this since I was 30.
I have deteriorated dramatically in 10 months. I wonder if I should just go with this or continue to pursue a MS dx. I don't think there is much to do for me anyway at my age.
I hv a swim spa and spend hours in the water swimming or floating as it controls my tremors. I wonder if that is sufficient for tx, since at least it does not have side effects other than REALLY wrinkled skin.
I hv really enjoyed reading this forum...one,you all hv walked the walk, two, it is much more difficult for you to share.....three,you all have value --- we all learn from you..rant or no rant you contribute to all of us...
How great it is we have a means to hear from you who otherwise would not have a voice....I LOVE reading yr posts...maybe those closest to u don't recognize your value, but there is an entire world out here who really appreciate hearing from you....
So sorry for the length.....would appreciate any thoughts.....
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