My Husband has been diagnosed with MS since 2008. He is 65, and has likely had MS for many years, but we didn't know it. He is athletic, stoic, strong and brave, or we would have figured this out earlier.
He has tried all the meds: Copaxone, Rebif, Gilenya, Aubagio, Tysabri, and currently Ocrevus. We have tried gluten free diet, dairy free diet, and now "whole food plant based." He uses a trekking pole for stability in walking.
H faithfully exercises on a stationary bike every day. He attends PT 2x per week.
Despite all of this, he sees no improvement, and I fear his disabilty is progressing. Last night, on a simple walk around the block, his legs got out in front of him, and he simply couldn't stop. He lurched forward, and fell flat on his face and head. This is a terrible, depressing development.
He will resist using a cane or other device that will provide stability. Indeed, he wouldn't even let me hold his hand last night when he was having stability problems. I think I need to have a conversation with him about another device, but he is so proud.
Thank you for listening, I simply needed to share.
He has tried all the meds: Copaxone, Rebif, Gilenya, Aubagio, Tysabri, and currently Ocrevus. We have tried gluten free diet, dairy free diet, and now "whole food plant based." He uses a trekking pole for stability in walking.
H faithfully exercises on a stationary bike every day. He attends PT 2x per week.
Despite all of this, he sees no improvement, and I fear his disabilty is progressing. Last night, on a simple walk around the block, his legs got out in front of him, and he simply couldn't stop. He lurched forward, and fell flat on his face and head. This is a terrible, depressing development.
He will resist using a cane or other device that will provide stability. Indeed, he wouldn't even let me hold his hand last night when he was having stability problems. I think I need to have a conversation with him about another device, but he is so proud.
Thank you for listening, I simply needed to share.
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