Hello everyone, I ask currently 30 years old. Everything started when I was 25.
My journey began five years ago the begining of this month. It started when I woke up one morning with a blurry left eye. I just thought my glasses were blurry. I kept wiping them, but nothing got better. I eventually closed my right eye three days later and notice I couldn't see!
I went to my eye doctor, an ophthalmologist. Both he and his assistant kept going back and forth between eyes alarmed. He eventually said it was optic neuritis and told me what that is. He sent me to a neuron ophthalmologist the next day.
The neuro ophthalmologist confirmed it was optic neuritis and sent me for an MRI.
I eventually went to see a regular neurologist. I started to get dysesthesias on the right side of my face and right arm. My right arm had gone numb and tingly for two days. It is now weaker than my left. I also have muscles twitches. MRIs have picked up about ten legions, mostly on the right side. But this neurologist said I didn't have enough lesions to have MS (OK...). I know the MacDonald criteria has a legion count for people without enough syptoms, but it isnt more than ten.
I started to see an MS specialist last year. He was angry I only ever had brain MRIs and no other tests. He ordered a c-spine MRI, blood tests, EVP, and OCT. They came back normal, but he said he's still monitoring me. He also said I might never had optic neuritis. He changed it to optical neuropathy. He is also in disagreement with the MRI reports by the radiologist.
In late October early November, I had a headache that lasted six days that I had to go to the emergency room to get rid of. The same thing happened last week, but for four days, no ER visit. The ER couldn't figure out the cause. They were not migraines.
I saw my neurologist on Monday, and he was very concerned about the headaches. He ordered more blood work and a brain and c-spine MRIs. I see him in May.
I have been lurking on this site for two years, just now decided to make an account. Who knows. Maybe nothing is wrong with me. Or something no one is looking for.
My journey began five years ago the begining of this month. It started when I woke up one morning with a blurry left eye. I just thought my glasses were blurry. I kept wiping them, but nothing got better. I eventually closed my right eye three days later and notice I couldn't see!
I went to my eye doctor, an ophthalmologist. Both he and his assistant kept going back and forth between eyes alarmed. He eventually said it was optic neuritis and told me what that is. He sent me to a neuron ophthalmologist the next day.
The neuro ophthalmologist confirmed it was optic neuritis and sent me for an MRI.
I eventually went to see a regular neurologist. I started to get dysesthesias on the right side of my face and right arm. My right arm had gone numb and tingly for two days. It is now weaker than my left. I also have muscles twitches. MRIs have picked up about ten legions, mostly on the right side. But this neurologist said I didn't have enough lesions to have MS (OK...). I know the MacDonald criteria has a legion count for people without enough syptoms, but it isnt more than ten.
I started to see an MS specialist last year. He was angry I only ever had brain MRIs and no other tests. He ordered a c-spine MRI, blood tests, EVP, and OCT. They came back normal, but he said he's still monitoring me. He also said I might never had optic neuritis. He changed it to optical neuropathy. He is also in disagreement with the MRI reports by the radiologist.
In late October early November, I had a headache that lasted six days that I had to go to the emergency room to get rid of. The same thing happened last week, but for four days, no ER visit. The ER couldn't figure out the cause. They were not migraines.
I saw my neurologist on Monday, and he was very concerned about the headaches. He ordered more blood work and a brain and c-spine MRIs. I see him in May.
I have been lurking on this site for two years, just now decided to make an account. Who knows. Maybe nothing is wrong with me. Or something no one is looking for.
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