Just a friendly reminder I guess. I'm in a facebook group that's diet-related. Today I read someone say this:
"Every time I have an MS attack (which is twice now) I always ..."
It struck me so funny I laughed. Not out of disrespect for the person - I believe they just weren't being mindful of how that might sound to some of us - but I laughed because of ME. Never since this MS journey began have I ever had a break. I cannot even comprehend or understand that statement. It nearly made me a little angry - again, not at the one saying it, but angry at my situation.
Here I sit, wondering how much actual life I have left in me (40 yrs old) and understanding how my 53 year old friend at the nursing home with MS could die so young. I can see it now. But I CANNOT give up. I think once I quit fighting that's it. No hope. But I'm not sure how much longer my strength (what I do have) will last.
Anyway - I know we are each going through our own personal experiences ... but for the sake of others, please be mindful of what you say. And of course I say all of this knowing my situation could be a lot worse. I can still walk some with help and some are totally bed bound. I'm sorry. I used to not understand how someone can get to that state AND even wondered if they had anything to do with it or if they could help it some how ... but now I see it and frankly it scares me a little.
One day at a time is all each of us can do - from the best to the worst.
"Every time I have an MS attack (which is twice now) I always ..."
It struck me so funny I laughed. Not out of disrespect for the person - I believe they just weren't being mindful of how that might sound to some of us - but I laughed because of ME. Never since this MS journey began have I ever had a break. I cannot even comprehend or understand that statement. It nearly made me a little angry - again, not at the one saying it, but angry at my situation.
Here I sit, wondering how much actual life I have left in me (40 yrs old) and understanding how my 53 year old friend at the nursing home with MS could die so young. I can see it now. But I CANNOT give up. I think once I quit fighting that's it. No hope. But I'm not sure how much longer my strength (what I do have) will last.
Anyway - I know we are each going through our own personal experiences ... but for the sake of others, please be mindful of what you say. And of course I say all of this knowing my situation could be a lot worse. I can still walk some with help and some are totally bed bound. I'm sorry. I used to not understand how someone can get to that state AND even wondered if they had anything to do with it or if they could help it some how ... but now I see it and frankly it scares me a little.
One day at a time is all each of us can do - from the best to the worst.
Comment