Article about MS Specialist and their value

[Marco]

The recent survey you ask about was conducted by the MS Trust in 2012. It revealed that nearly one fifth of respondents had seen neither an MS specialist nurse (MSSN) nor a neurologist in the past year, and so will not have received the comprehensive annual review recommended by the National Institute for Health and Care Excellence (NICE).


This indeed was very concerning as the MS Landscape has and continues to evolve and there are many people with MS who could benefit from looking at how they are managing their disease. It is possible that they are missing out on more appropriate medications, advice about empirically based interventions.


It might be that there are medications and treatments available they are now eligible to receive. Also MS professionals have up to date knowledge of new research and new ways of working which without regular contact patients will no gain benefit from this.


Another concern I have is that all too often patients end up with an impoverished quality of life including broken relationships, unemployment and social isolation which if there had been regular interaction with their MS professional might have been preventable.


Complete article here: http://www.news-medical.net/news/201...nita-Rose.aspx

[Waydwnsouth1]

That's a good article about MS Specialist's. I also watched the videos. While I am waiting on my appointment with my new MS Specialist, this article and videos gave me pause to rethink how I have been managing my disease. As I look back on visits with my previous 2 Neurologists I don't know that there was ever a "PLAN".

Though neither Neuro agreed I believe my disease has progressed to SPMS. I say that because I never seem to be in remission. Or, perhaps what I thought I understood I don't really understand at all.

I am anxious, as in excited, to see my new Neuro now.

[hunterd]

Marco, thank you for the article, and thank you for all of the interesting points. Especially for keeping everyone up to date.

[Shoo]

I am one of those people who don't see an ms dr.

I was diagnosed 28 yrs ago. The last medication I was on was about 12 yrs ago The dr said he had nothing else to help me and just a few yrs ago when I was in the hospital an ms dr told my husband he had nothing to help me Do you how many times I heard that

I gave up on ms drs

I am now home bound and couldn't see a ms dr unless they came to the house or I was in the hospital

Shoo