The recent survey you ask about was conducted by the MS Trust in 2012. It revealed that nearly one fifth of respondents had seen neither an MS specialist nurse (MSSN) nor a neurologist in the past year, and so will not have received the comprehensive annual review recommended by the National Institute for Health and Care Excellence (NICE).
This indeed was very concerning as the MS Landscape has and continues to evolve and there are many people with MS who could benefit from looking at how they are managing their disease. It is possible that they are missing out on more appropriate medications, advice about empirically based interventions.
It might be that there are medications and treatments available they are now eligible to receive. Also MS professionals have up to date knowledge of new research and new ways of working which without regular contact patients will no gain benefit from this.
Another concern I have is that all too often patients end up with an impoverished quality of life including broken relationships, unemployment and social isolation which if there had been regular interaction with their MS professional might have been preventable.
Complete article here: http://www.news-medical.net/news/201...nita-Rose.aspx
This indeed was very concerning as the MS Landscape has and continues to evolve and there are many people with MS who could benefit from looking at how they are managing their disease. It is possible that they are missing out on more appropriate medications, advice about empirically based interventions.
It might be that there are medications and treatments available they are now eligible to receive. Also MS professionals have up to date knowledge of new research and new ways of working which without regular contact patients will no gain benefit from this.
Another concern I have is that all too often patients end up with an impoverished quality of life including broken relationships, unemployment and social isolation which if there had been regular interaction with their MS professional might have been preventable.
Complete article here: http://www.news-medical.net/news/201...nita-Rose.aspx
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