Hello MSWorld
I would like to thank everyone who read and answered my last two posts concerning the death of my little guy and my two hospital visits.
An update: I do have a cardiac issue...that is the bottom line. It is called a Prolonged QT Interval. It is most likely hereditary and I am undergoing genetic testing for it. If it's genetic I'm going to have to get the boys tested too. I had a heart issue as a child and it seems they overlooked something back in the 70s. LOL.
Is it serious? Yes. Can it be cured? No. Can it be treated? Yes.
Although having a cardiac issue is scary I'm not sure it's a scary as it would've been had I not had MS. And by the way this is not MS related. And if I would ever die from this prolonged QT interval...death is immediate I would not even know it's happening. That is a blessing .
So here I am just turned 53 years old I have MS, I have gastroparesis, and now I have a cardiac issue. Of the three issues I would say gastroparesis (caused by MS) is the worse closely followed by MS itself. But because of the cardiac issue I now know that tomorrow is never guaranteed.
I have always been a person that just lives for the day. If it's a good day I do something fun. If it's a bad day well then I'm stuck in the house. And when I'm stuck in the house I try to find things to do. Reading a good book, watching television , or quilting. And every once in a while a friend stops by to see how I'm doing and we chat for a while.
And every once in a while I whine and cry it helps short-term.
This is not the life that I envisioned for myself. But it's the only one I have. So I have to try to make the most of it. Worrying about it will only make it worse. Complaining about it will just take up valuable time. So I learn to live with it. And I count my blessings as they come along.
For those of you that are feeling good today please stop surfing the Internet and do something fun whatever that may be. And for those not feeling very well today... Tomorrow might be better. Live for the day.
I would like to thank everyone who read and answered my last two posts concerning the death of my little guy and my two hospital visits.
An update: I do have a cardiac issue...that is the bottom line. It is called a Prolonged QT Interval. It is most likely hereditary and I am undergoing genetic testing for it. If it's genetic I'm going to have to get the boys tested too. I had a heart issue as a child and it seems they overlooked something back in the 70s. LOL.
Is it serious? Yes. Can it be cured? No. Can it be treated? Yes.
Although having a cardiac issue is scary I'm not sure it's a scary as it would've been had I not had MS. And by the way this is not MS related. And if I would ever die from this prolonged QT interval...death is immediate I would not even know it's happening. That is a blessing .
So here I am just turned 53 years old I have MS, I have gastroparesis, and now I have a cardiac issue. Of the three issues I would say gastroparesis (caused by MS) is the worse closely followed by MS itself. But because of the cardiac issue I now know that tomorrow is never guaranteed.
I have always been a person that just lives for the day. If it's a good day I do something fun. If it's a bad day well then I'm stuck in the house. And when I'm stuck in the house I try to find things to do. Reading a good book, watching television , or quilting. And every once in a while a friend stops by to see how I'm doing and we chat for a while.
And every once in a while I whine and cry it helps short-term.
This is not the life that I envisioned for myself. But it's the only one I have. So I have to try to make the most of it. Worrying about it will only make it worse. Complaining about it will just take up valuable time. So I learn to live with it. And I count my blessings as they come along.
For those of you that are feeling good today please stop surfing the Internet and do something fun whatever that may be. And for those not feeling very well today... Tomorrow might be better. Live for the day.
I hope it's not something you passed onto your boys .... 
She was young (still in her 20s), left behind 4 little ones. Small comfort to those left behind - she was holding a teacup she'd inherited from our grandmother, that was kept on display.
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