Yesterday my older son had his first family get together at his new house he built. It was a typical South Louisiana Easter weekend get together. Boiled crawfish, hamburgers, hot dogs and sweets for days. Oh and of course cold beer.
Everything fine and I was holding up as best as I could. Fatigue was gnawing at me, pain in my legs and walking was out of the question. Late in the afternoon his next door neighbors walked over and my DW and I were talking with them. Somehow the subject turned to me being in a wheelchair. My DW explained I have MS and talked to them about the struggles. I was really proud of her. Then the neighbor lady said she knew someone that has MS and she took a medication that began with a C.
I knew right away what she meant but I had tired of of the conversation and was ready to move one. My DW sensed that and tried to change the subject but this lady wasn't letting up. She kept saying I sure wish I could think of that medication. I know it starts with a C. Finally I had heard enough and said she takes Copaxone, that's the name of the medication.
That's when it happened. Here she goes...Thaaat's it. Well let me tell you she takes that and she is doing just GREAT!! At that point I could have blasted her. It just rubbed me the wrong way. But then I thought, she has now way of knowing I just had a flare, she doesn't know I just went through hell with IVSM treatment. So I explained the treatment protocol for Copoxane and for Avonex which is what I take.
Patience won out this time and I hope it wins out every time. As I think back about the conversation her husband was truly engaging and interested in MS. She was a one upper. You know the kind, they know more and have done more than anyone. Anyway I'll finish boring you now. I guess the timing for that conversation was just bad.
Everything fine and I was holding up as best as I could. Fatigue was gnawing at me, pain in my legs and walking was out of the question. Late in the afternoon his next door neighbors walked over and my DW and I were talking with them. Somehow the subject turned to me being in a wheelchair. My DW explained I have MS and talked to them about the struggles. I was really proud of her. Then the neighbor lady said she knew someone that has MS and she took a medication that began with a C.
I knew right away what she meant but I had tired of of the conversation and was ready to move one. My DW sensed that and tried to change the subject but this lady wasn't letting up. She kept saying I sure wish I could think of that medication. I know it starts with a C. Finally I had heard enough and said she takes Copaxone, that's the name of the medication.
That's when it happened. Here she goes...Thaaat's it. Well let me tell you she takes that and she is doing just GREAT!! At that point I could have blasted her. It just rubbed me the wrong way. But then I thought, she has now way of knowing I just had a flare, she doesn't know I just went through hell with IVSM treatment. So I explained the treatment protocol for Copoxane and for Avonex which is what I take.
Patience won out this time and I hope it wins out every time. As I think back about the conversation her husband was truly engaging and interested in MS. She was a one upper. You know the kind, they know more and have done more than anyone. Anyway I'll finish boring you now. I guess the timing for that conversation was just bad.
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