Interesting. I am two weeks out from my last scheduled Infusion. They suspected an infection, so it was not given. Turns out no infection, so get my Infusion tomorrow. I am one of those people who feel it the week before an infusion. So this last week has been really tough. Much more fatigue, weakness, and dizziness is back. I think it is the fatigue causing other symptoms.
Here is the really interesting part. I have been in the middle of a program designed to help working memory. I was seeing improvement, then the missed Infusion. My performance has dropped down and the exercises with moving pieces now make me feel like I did when I worked.
If my performance increases after Infusion and other issues go away, then I will know for sure Tysabri is not only slowing progression, but helping with daily symptoms. I know it is not designed to do that, but I may be one of the people who get added benefit. Will let you know. I know my neuropsychiatrist is curious too.
In the meantime, Infusion can't get here quick enough.
Here is the really interesting part. I have been in the middle of a program designed to help working memory. I was seeing improvement, then the missed Infusion. My performance has dropped down and the exercises with moving pieces now make me feel like I did when I worked.
If my performance increases after Infusion and other issues go away, then I will know for sure Tysabri is not only slowing progression, but helping with daily symptoms. I know it is not designed to do that, but I may be one of the people who get added benefit. Will let you know. I know my neuropsychiatrist is curious too.
In the meantime, Infusion can't get here quick enough.
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