Ugh. About a month ago I learned that for the second year in a row, since taking Tysabri, my MRI has shown no new lesions and smaller existing lesions. Tysabri was my first-line drug and I have had no relapses and no side-effects. This was my miracle drug. So, I got a bit upset this morning when my neuro called to say that my latest bloodwork was showing that I am JCV+.
He said I could stay on Tysabri (I actually have infusion scheduled for tomorrow, and he basically said it wouldn't make much of a difference if I had it or not.) Or I can consider one of the Oral meds (I nixed the idea of interferons two years ago, I will not be a pin cushion.)
I guess I'm a little stressed out because Gilenya and Tecfidera both have instances of PML as well, and they also have a lot of side-effects! And he said he did not recommend Aubagio for women in their child-bearing years as Aubagio can harm an unborn baby and can stay in your system for years. I'm 26 and not planning on having a baby any time soon, but worrying about a medication I'm taking harming a hypothetical unborn child in anyway even years after taking a drug is SO not part of the deal here, MS Gods! So that one is out.
Anyone who's gone off Tysbari have any recommendations? Would you stay on? Obviously, in the end it will be up to me, but I just want to hear from people in similar situations.
He said I could stay on Tysabri (I actually have infusion scheduled for tomorrow, and he basically said it wouldn't make much of a difference if I had it or not.) Or I can consider one of the Oral meds (I nixed the idea of interferons two years ago, I will not be a pin cushion.)
I guess I'm a little stressed out because Gilenya and Tecfidera both have instances of PML as well, and they also have a lot of side-effects! And he said he did not recommend Aubagio for women in their child-bearing years as Aubagio can harm an unborn baby and can stay in your system for years. I'm 26 and not planning on having a baby any time soon, but worrying about a medication I'm taking harming a hypothetical unborn child in anyway even years after taking a drug is SO not part of the deal here, MS Gods! So that one is out.
Anyone who's gone off Tysbari have any recommendations? Would you stay on? Obviously, in the end it will be up to me, but I just want to hear from people in similar situations.
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